ArticleJournal of pediatric psychology2020
Assessing Health-Related Quality of Life in Children and Adolescents with Diabetes: Development and Psychometrics of the Type 1 Diabetes and Life (T1DAL) Measures.
Article in Journal of pediatric psychology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05734313 (Telemedicine-Delivered Unified Protocol for Cognitive Behavioral Therapy for Anxiety and Depression in Young Adults With Type 1 Diabetes), which is not on this map. Cited by 37 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Telemedicine-Delivered Unified Protocol for Cognitive Behavioral Therapy for Anxiety and Depression in Young Adults With Type 1 Diabetes
Who cites it
37 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Comprehensive Overview of Quality of Life Instruments Used in Studies of Children with Diabetes: A Systematic Mapping Review.Pediatric diabetes · 2023Pooled it
- The Effects of Diabetes Self-Management Education on Quality of Life for Persons With Type 1 Diabetes: A Systematic Review of Randomized Controlled Trials.The science of diabetes self-management and care · 2022Pooled it
- A Systematic Review of the Use and Quality of Qualitative Methods in Concept Elicitation for Measures with Children and Young People.The patient · 2020Pooled it
- Can the Diabetes Eating Problem Survey-Revised (DEPS-R) reliably identify eating disorder diagnosis in women with type 1 diabetes?Diabetic medicine : a journal of the British Diabetic Association · 2026Trial
- Positive affect predicts enhanced quality of life and glycemic outcomes in adolescents with type 1 diabetes.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2026Trial
- An RCT of a family intervention for adolescents living with type 1 diabetes: Who benefits most?Diabetic medicine : a journal of the British Diabetic Association · 2026Trial
- Associations of Coping Strategies With Glycemic and Psychosocial Outcomes Among Adolescents With Type 1 Diabetes Experiencing Diabetes Distress.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2024Trial
- Promoting Resilience in Stress Management for Adolescents With Type 1 Diabetes: A Randomized Clinical Trial.JAMA network open · 2024Trial
- Hybrid Closed Loop Systems Improve Glycemic Control and Quality of Life in Historically Minoritized Youth with Diabetes.Diabetes technology & therapeutics · 2024Trial
- Determinants of Health-Related Quality of Life in Children and Adolescents With Type 1 Diabetes: A Cross-Sectional Study.Health science reports · 2026Article
- School-partnered collaborative care intervention for young children with type 1 diabetes: A pilot and feasibility protocol.Contemporary clinical trials · 2026Article
- Article
- Review of Health Care Professional-Delivered Behavioral Interventions for Youth with Type 1 Diabetes.Current diabetes reports · 2025Review
- A clinic-based healthcare transition preparation program for adolescents and young adults with type 1 diabetes: Study protocol for the SHIFT randomized clinical trial.Contemporary clinical trials communications · 2025Article
- Design of the type 1 diabetes and life (T1DAL) pilot and feasibility study: A brief telehealth intervention targeting health-related quality of life across clinical settings.Contemporary clinical trials communications · 2025Article
- SCI - U: Validation of an updated Self-Care Inventory for contemporary diabetes management in adolescents with type 1 diabetes.Diabetes research and clinical practice · 2025Article
- Intervention to reduce barriers to type 1 diabetes self-management: Diabetes Journey study design and participant characteristics.Contemporary clinical trials · 2025Article
- Assessment of Quality of Life of Children and Adolescents with Type 1 Diabetes in Bahrain Using PedsQL 3.2 Diabetes Module.Journal of clinical medicine · 2025Article
- Glycemic and Psychosocial Correlates of Continuous Glucose Monitor Use Among Adolescents With Type 1 Diabetes.Journal of diabetes science and technology · 2025Article
- Quality of life in young adults with type 1 diabetes.Health care transitions · 2025Article
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
objectiveTo develop and validate new measures of diabetes-specific health-related quality of life (HRQOL) for people with type 1 diabetes (T1D) that are brief, developmentally appropriate, and usable in clinical research and care. Here we report on the phases of developing and validating the self-report Type 1 Diabetes and Life (T1DAL) measures for children (age 8-11) and adolescents (age 12-17).
methodsMeasure development included qualitative interviews with youth and parents (n = 16 dyads) followed by piloting draft measures and conducting cognitive debriefing with youth (n = 9) to refine the measures. To evaluate the psychometric properties, children (n = 194) and adolescents (n = 257) at three T1D Exchange Clinic Network sites completed the age-appropriate T1DAL measure and previously validated questionnaires measuring related constructs. Using psychometric data, the investigators reduced the length of each T1DAL measure to 21 and 23 items, respectively, and conducted a final round of cognitive debriefing with six children and adolescents.
resultsThe T1DAL measures for children and adolescents demonstrated good internal consistency (α = 0.84 and 0.89, respectively) and test-retest reliability (r = 0.78 and 0.80, respectively). Significant correlations between the T1DAL scores and measures of general quality of life, generic and diabetes-specific HRQOL, diabetes burden, and diabetes strengths demonstrated construct validity. Correlations with measures of self-management (child and adolescent) and glycemic control (adolescent only) demonstrated criterion validity. Factor analyses indicated four developmentally specific subscales per measure. Participants reported satisfaction with the measures.
conclusionsThe new T1DAL measures for children and adolescents with T1D are reliable, valid, and suitable for use in care settings and clinical research.
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