Evidence map›Paper›PMID 31662479›Full record

ArticleJournal of medical ethics2020

Is 'best interests' the right standard in cases like that of Charlie Gard?

Robert D Truog

Abstract readComment
PubMed Publisher
In one paragraph

Article in Journal of medical ethics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Raqeeb, Haastrup, and Evans: Seeking Consistency through a Distributive Justice-Based Approach to Limitation of Treatment in the Context of Dispute.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2022
    Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

1 author.

Robert D TruogCenter for Bioethics, Harvard Medical School, Boston, MA 02115, USA robert_truog@hms.harvard.edu.ORCID 0000-0001-5384-8281

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Savulescu and colleagues have provided interesting insights into how the UK public view the 'best interests' of children like Charlie Gard. But is best interests the right standard for evaluating these types of cases? In the USA, both clinical decisions and legal judgments tend to follow the 'harm principle', which holds that parental choices for their children should prevail unless their decisions subject the child to avoidable harm. The case of Charlie Gard, and others like it, show how the USA and the UK have strikingly different approaches for making decisions about the treatment of severely disabled children.

Indexed as

Children with DisabilitiesChildDecision MakingFamilyHumansJudgmentParentsallowing minors to dieattitudes toward deathbills, laws and casesdisabilitiesminors/parental consent

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.