ArticleJournal of adolescent and young adult oncology2020
End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice.
Article in Journal of adolescent and young adult oncology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 41 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
41 citing papers in PubMed, 2 syntheses or guidelines pooled it, 95 citations in OpenAlex.
- The Current State of Palliative Care Research for Adolescents and Young Adults With Cancer: A Systematic Review and Meta-Thematic Analysis of Empirical Literature.Psycho-oncology · 2025Pooled it
- Delphi Initiative for Early-Onset Colorectal Cancer (DIRECt) International Management Guidelines.Clinical gastroenterology and hepatology : the official clinical practice journal of the American Gastroenterological Association · 2023Guideline
- Pediatric Advance Care Planning and Adolescent Preparedness and Quality of Life: An RCT.Pediatrics · 2025Trial
- Effect of the Family-Centered Advance Care Planning for Teens with Cancer Intervention on Sustainability of Congruence About End-of-Life Treatment Preferences: A Randomized Clinical Trial.JAMA network open · 2022Trial
- An Intervention in Congruence for End-of-Life Treatment Preference: A Randomized Trial.Pediatrics · 2022Trial
- Supporting Advance Care Planning Among Mandarin and Cantonese Speaking Communities: A Qualitative Exploratory Study.Current oncology (Toronto, Ont.) · 2026Article
- Access to Online Patient Portals for Adolescents With Cancer: Benefits, Concerns, and Challenges.Pediatric blood & cancer · 2026Article
- Engaging in Palliative Care Conversations With Healthcare Providers: A Phenomenological Young Adult Cancer Study.Qualitative health research · 2026Article
- Palliative care involvement and intensity of end-of-life care among adolescents and young adults with cancer: a population-based study.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2025Article
- "You Can Rest Knowing That We Know What You Want"-Longitudinal Advance Care Planning Discussions With Young Adults Receiving Hematopoietic Stem Cell Transplantation.Psycho-oncology · 2025Article
- Facing the cancer-related life threat as adolescent and young adult (AYA) after initial diagnosis: A qualitative interview study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Advance Care Planning Conversations in Pediatric Patients with Refractory Oncologic Disease.Children (Basel, Switzerland) · 2025Review
- Perceived problems of parents of adolescents with cancer: A qualitative study.Journal of education and health promotion · 2025Article
- Alignment of Palliative Care Service Structure and Standards of Care for Adolescents and Young Adults with Cancer: An International Survey of Clinical Practice.Journal of palliative medicine · 2024Article
- Characteristics of adolescent and young adult patients with cancer receiving home-based palliative care: A retrospective study at a single center.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- The Ethical Complexity of Medical Decision Making in the Adolescent Oncology Patient.Current oncology (Toronto, Ont.) · 2024Article
- Need for Behavioral Interventions for Young Adults Living with Advanced Cancer in the U.S.Cancers · 2024Article
- Facing life-threat during youth: a qualitative study on challenges, coping, and needs among adolescents and young adults with cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Attachment as a mechanism influencing end-of-life communication: An analogue investigation.PloS one · 2024Article
- Specialty Palliative Care and Symptom Severity and Control in Adolescents and Young Adults With Cancer.JAMA network open · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 5 institutions in 2 countries.
Funding
Abstract
A growing evidence base highlights the negative impact of poor psychosocial care at end-of-life. Adolescents and young adults (AYAs) 15-39 years of age with cancer face unique medical and psychosocial challenges that make them especially vulnerable when treatment is not successful. Although the importance of age-appropriate medical and psychosocial care is internationally recognized for AYAs across the cancer trajectory, there is little guidance on best-practice care and communication practices with AYAs as they approach the end-of-life. We conducted a narrative review and found evidence points to the potential benefits of introducing palliative care teams early in the care trajectory. Research undertaken to date emphasizes the importance of exploring AYAs' preferences around end-of-life issues in a repeated, consistent manner, and highlighted that AYAs may have strong preferences on a range of issues such as being able to stay in their own home, being comfortable and free from pain, and expressing their wishes to loved ones. We highlight a number of best-practice recommendations to guide clinicians around the critical elements of
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.