Evidence map›Paper›PMID 31657121›Full record

ArticlePediatric transplantation2019

Crowdsourced analysis of factors and misconceptions associated with parental willingness to donate their child's organs.

Amy H Jones, Marni B Jacobs, Tessie W October

Abstract read
In one paragraph

Article in Pediatric transplantation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

3 authors.

Amy H JonesDepartment of Critical Care, Children's National Health System, Washington, District of Columbia.ORCID 0000-0002-7873-2258
Marni B JacobsChildren's Research Institute at Children's National Health System, Children's National Hospital, Washington, District of Columbia.
Tessie W OctoberDepartment of Critical Care, Children's National Health System, Washington, District of Columbia.ORCID 0000-0003-0664-3472

Funding

Enhancing Parent-Provider Communication during Critical Care Decision-makingK23HD080902 · NICHD · CHILDREN'S RESEARCH INSTITUTE · PI OCTOBER, TESSIE W. · 2015 to 2018
$558k
NICHD NIH HHS K23 HD080902
6 · The paper itself

Abstract

We evaluated factors associated with a parental willingness to donate their child's organs. A twenty-one-question survey was administered to US parents with at least one child to measure organ donation acceptability and brain death beliefs using an online crowdsourcing medium, Amazon's Mechanical Turk Prime. We collected 425 surveys; 76% were willing to donate their own and 65% willing to donate their child's organs. Parents who agreed brain death was synonymous with death (47%) were 2.37 times more willing to donate. Compared with White respondents, Black (OR 5.27, CI 2.81, 9.88) and Hispanic (OR 2.24, CI 1.06-4.75) participants were more likely to believe doctors "steal organs from patients" and "declare someone dead based on their skin color" (OR 4.97, CI 2.65-9.32; OR 2.19, CI 1.01-4.72, respectively). Lower income participants were also more likely to believe doctors "steal organs from patients," OR 0.81 (95% CI 0.68-0.96 for increasing income) and "declare someone dead based on how much money they have," OR 0.80 (95% CI 0.67-0.96 for increasing income). Confusion surrounding brain death and skepticism (particularly among racial and ethnic minorities and lower socioeconomic groups) toward doctors' motivations for donation contribute to lack of parental willingness to donate.

Indexed as

Attitude to HealthCrowdsourcingTissue and Organ ProcurementAdolescentAdultBrain DeathChildFemaleHumansMaleMiddle AgedParentsSelf ReportYoung Adultbrain deathsurveys and questionnairestissue and organ procurement

Identifiers

PMID31657121
PMCPMC7347227

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.