ArticleCongenital heart disease2019
Parenting stress trajectories during infancy in infants with congenital heart disease: Comparison of single-ventricle and biventricular heart physiology.
Article in Congenital heart disease, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06158373 (The Effect of Mother's Massage and Safe Swaddling on Bonding, Self-effıcacy and Vital Signs in Infants Undergoing Cardiovascular Surgery), which is not on this map. Cited by 11 papers.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
The Effect of Mother's Massage and Safe Swaddling on Bonding, Self-effıcacy and Vital Signs in Infants Undergoing Cardiovascular Surgery
Who cites it
11 citing papers in PubMed.
- Guided Participation Support of Coparenting an Infant With Complex Congenital Heart Disease: A Randomized Pilot Feasibility Study.Research and theory for nursing practice · 2022Trial
- Perinatal predictors of parenting stress trajectories during the first 3 years of parenthood: A Maternal and Child Health Handbook cohort study.JCPP advances · 2026Article
- Burden of Depression, Anxiety, and Stress in Caregivers at Congenital Heart Surgery Clinic.Pediatric cardiology · 2026Article
- Empowerment of parents of infants with congenital heart disease after rapid genome sequencing : April 11, 2025, revised June 20, 2025.Journal of community genetics · 2025Article
- Characteristics of Interaction Between Caregivers and Children with Chronic Diseases in Oral Medication-Taking Situations: A Validation Study of the Interaction Rating Scale.Maternal and child health journal · 2025Article
- Quality of Life and Stress-Related Psychological Distress Among Families Caring for Children with Cardiac Malformations Under Conservative Treatment: A Cross-Sectional Study Using the 36-Item Short Form Health Survey, the Perceived Stress Scale, and the Parental Burnout Assessment Scale.Diseases (Basel, Switzerland) · 2025Article
- Exploring Stress and Coping in Caregivers of Children with Pulmonary Vein Stenosis: A Mixed-Method Study.Children (Basel, Switzerland) · 2024Article
- Stress Coping Strategies in Parents of Newborns and Infants with Congenital Cyanotic Heart Disease with Regard to Stress Levels and Negative Emotions.Children (Basel, Switzerland) · 2024Article
- Undernutrition in young children with congenital heart disease undergoing cardiac surgery in a low-income environment.BMC pediatrics · 2024Observational
- Toxic Stress as a Potential Factor Inducing Negative Emotions in Parents of Newborns and Infants with Cyanotic Congenital Heart Disease.Children (Basel, Switzerland) · 2023Article
- Psychological needs of parents of children with complicated congenital heart disease after admitting to pediatric intensive care unit: A questionnaire study.World journal of clinical cases · 2022Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
objectiveParents of infants with congenital heart disease (CHD) experience increased parenting stress levels, potentially interfering with parenting practices and bear adverse family outcomes. Condition severity has been linked to parenting stress. The current study aimed to explore parenting stress trajectories over infancy in parents of infants with complex CHD, and to compare them by post-operative cardiac physiology.
designData from a larger prospective cohort study was analyzed using longitudinal mixed-effects regression modeling.
settingCardiac intensive care unit and outpatient clinic of a 480-bed children's hospital in the American North-Atlantic region.
participantsParents of infants with complex CHD (n = 90). MEASURES: Parenting stress was measured via the parenting stress index-long form over four time points during infancy.
resultsParents of infants with a single-ventricle heart experienced a decrease in total stress over time. Parents of infants with a biventricular heart experienced a decrease in attachment-related stress, and an increase in stress related to infant temperament over time. Parenting stress trajectories over time significantly differed between groups on infant temperamental subscales.
conclusionsFindings highlight stressful and potentially risky periods for parents of infants with complex CHD, and introduce additional illness-related and psychosocial/familial aspects to the parenting stress concept. Early intervention may promote parental adaptive coping and productive parenting practices in this population.
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