ArticleBMC health services research2019
Improving quality of life in cancer patients through higher participation and health literacy: study protocol for evaluating the oncological social care project (OSCAR).
Article in BMC health services research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed, 20 citations in OpenAlex.
- Characteristics and patient-reported outcomes associated with dropout in severely affected oncological patients: an exploratory study.BMC medical research methodology · 2021Trial
- Imputing longitudinal PROM data at the item and score level in clinical trials.BMC medical research methodology · 2026Article
- Difficulties in Care and Unmet Needs from the Perspective of Patients with Lung Cancer and Stroke - A Qualitative Study in Germany.Patient preference and adherence · 2025Article
- The effect of social care nurses on health related quality of life in patients with advanced cancer: A non-randomized, multicenter, controlled trial.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Patient information, communication and competence empowerment in oncology: Results and learnings from the PIKKO study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Associations among navigational support and health care utilization and costs in patients with advanced cancer: An analysis based on administrative health insurance data.Cancer medicine · 2023Article
- Factors Affecting Quality of Life of Cancer Patients in North India.Asian Pacific journal of cancer prevention : APJCP · 2023Article
- Development of a patient-oriented navigation model for patients with lung cancer and stroke in Germany.BMC health services research · 2022Article
- Article
- Patient Navigation-Who Needs What? Awareness of Patient Navigators and Ranking of Their Tasks in the General Population in Germany.International journal of environmental research and public health · 2022Article
- What do people with lung cancer and stroke expect from patient navigation? A qualitative study in Germany.BMJ open · 2021Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundCancer patients experience psychological and social distress due to their medical treatment and social issues. However, continuous and specialized social support is still lacking. In Germany, a group of company health insurance funds has developed an approach to support cancer patients with monthly structured interviews conducted by specially trained Social Care Nurses. The nurses will identify patient needs in order to provide help with medical, personal, and social matters. One aim of the scientific evaluation is to analyze the effect of the consultations on various patient-reported outcomes, especially quality of life. The evaluation concept will be described in this study protocol. METHODS/
designThe evaluation is a non-randomized, controlled, multi-center intervention study with a mixed-method design. It consists of three research modules which include primary data from questionnaires, and claims data from the health insurance funds. In Module 1, cancer patients will be recruited to form an intervention group (OSCAR, n = 150) and a control group (n = 200) in four study centers for a period of 1 year. One baseline and three follow-up questionnaires will be conducted to survey the patient-reported outcomes. Relevant secondary outcomes are health literacy, participation, and physician-patient communication. In Module 2, claims data will be used to analyze cost effects and thereby assess effectivity and hospitalization. Module 3 will involve a qualitative analysis of project diaries kept by the Social Care Nurses. The diaries will record the nurses' practical experiences and the benefits of deploying OSCAR across the German healthcare system. DISCUSSION: OSCAR is an innovative way of providing cancer patients with continuous support to improve their quality of life. The evaluation concept aims to assess the effects of the monthly consultations by the Social Care Nurses on the patients, and will use a mixed-method design. The results are important for assessing the transferability of OSCAR to the healthcare system as a whole.
trial registrationGerman Clinical Trials Register (DRKS-ID: DRKS00013640 ). Registered 29 December 2017.
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