ArticleBalkan medical journal2019
Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness
Article in Balkan medical journal, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers.
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Who cites it
27 citing papers in PubMed.
- Accounting for the Unaccounted in AI and Care: Bringing Young Carers into the AI Realm.Journal of medical Internet research · 2026Article
- Little kidneys amid large global inequities.Pediatric nephrology (Berlin, Germany) · 2026Review
- Health-related quality of life in children with multiple endocrine neoplasia (MEN) and their siblings.The Journal of clinical endocrinology and metabolism · 2026Article
- Disorder Type and Severity as Predictors of Mental Health in Siblings of Children with Chronic Disorders.Journal of autism and developmental disorders · 2026Article
- Parents' Experiences of Receiving a Severe Combined Immunodeficiency (SCID) or Non-SCID T-Cell Lymphopenia Outcome During the Newborn Screening Evaluation in England.International journal of neonatal screening · 2026Article
- Sibling psychopathology as a mediator between disability in youth with chronic physical illness and sibling Health-Related quality of life.Health and quality of life outcomes · 2026Article
- Well-Being and Mental Health of Siblings of Children with Intellectual Disability: a Longitudinal Twin-Family Study.Journal of developmental and physical disabilities · 2026Article
- Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study.Journal of child health care : for professionals working with children in the hospital and community · 2025Article
- The Journey to Autonomy: Understanding Parental Concerns During the Transition of Children with Chronic Digestive Disorders.Medicina (Kaunas, Lithuania) · 2025Article
- Feasibility, acceptability and preliminary effectiveness of a mental health drop-in centre for the siblings of young people attending a paediatric hospital.Journal of child health care : for professionals working with children in the hospital and community · 2025Article
- EvaluatingPEC innovation · 2024Article
- Real-world psychosocial impact among patients with juvenile idiopathic arthritis and families in Spain.Pediatric rheumatology online journal · 2024Observational
- Caring Under Pressure: Investigating Parental Attitudes in Mother-Child Chronic Illness Dynamics.Children (Basel, Switzerland) · 2024Article
- Adolescent Young Carers Who Provide Care to Siblings.Healthcare (Basel, Switzerland) · 2024Article
- Article
- Perceived family impact and coping mechanisms of caregivers of children with nephrotic syndrome.Pediatric nephrology (Berlin, Germany) · 2023Article
- Quality of life in families under quarantine: a cross-sectional study in seven countries during the first outbreak of COVID-19.Frontiers in psychiatry · 2023Article
- Evaluation of the nutritional status of children with type 1 diabetes and their healthy siblings.Pediatric endocrinology, diabetes, and metabolism · 2023Article
- Review
- Hospital Support for Siblings of Children With Illness in Japan.Frontiers in pediatrics · 2022Article
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Chronic disease of children can cause changes in the health-related quality of life (HrQoL) of the family members. Aims: To evaluate the HrQoL of healthy siblings of children with chronic disease. Study Design: Cross-sectional study. Methods: The study included healthy sibling of children with chronic disease (cerebral palsy, epilepsy, diabetes, celiac disease, hematologic/oncologic disease, or asthma) and healthy sibling of healthy children to evaluate the quality of life. We used the Pediatric Quality of Life Inventory questionnaire; the physical health and psychosocial health scores were calculated using the responses of the sibling and parent. The primary endpoint was the comparison of HrQoL scores of healthy siblings of children with chronic disease and that of healthy siblings of healthy children. Results: This study included a respective healthy sibling of 191 children with chronic disease and healthy sibling of 100 healthy children. The physical health, psychosocial health, and total health scores of healthy siblings of children with chronic disease were significantly lower than that of healthy siblings of healthy children (p<0.001). Among the healthy siblings of children with chronic disease, the lowest psychosocial health score was found in the siblings of children with cerebral palsy, hematologic/oncologic disease, and asthma (p<0.001). The global impact on the quality of life for healthy siblings of children with chronic disease was significantly higher in the self-report of the children than that of the parents (30.4% versus 15.1%, p<0.05). Conclusion: Most healthy siblings of children with chronic disease are physically and psychosocially affected and there is low parental awareness of this condition. This can increase the risk of emotional neglect and abuse of these children. Therefore, special support programs are needed for the families of children with chronic diseases.
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