ArticleJournal of diabetes science and technology2020
Peer Mentoring in the Do-it-Yourself Artificial Pancreas System Community.
Article in Journal of diabetes science and technology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed.
- Trial
- Transformations in Diabetes Care: Lessons From Commons-Based, Peer-Produced Citizen Science.Sociology of health & illness · 2026Article
- Examining the Emotional and Physical Health Impact in Users of Open-Source Automated Insulin Delivery and Sources of Support: Qualitative Analysis of Patient Narratives.Journal of medical Internet research · 2025Article
- [Position paper: Open-source technology in the treatment of people living with diabetes mellitus-an Austrian perspective : Technology Committee of the Austrian Diabetes Association].Wiener klinische Wochenschrift · 2024Article
- Breaking a feedback loop: A reassessment of an investigator initiated OS-AID study.Diabetes, obesity & metabolism · 2024Article
- Internet-Based Recruitment and Retention of Young Adults With Type 1 Diabetes: Cross-Sectional Study.JMIR formative research · 2023Article
- Subsequent Device Usage and Caregiver Attitudes to Do-It-Yourself Real-Time Continuous Glucose Monitoring (DIY-rtCGM) among Children with Type 1 Diabetes 3 Months after Participation in a Randomized Controlled Trial.Pediatric diabetes · 2023Article
- Article
- Automated Insulin Delivery in Real Life (AID-IRL): Real-World User Perspectives on Commercial AID.Journal of diabetes science and technology · 2022Article
- A scoping review of Do-It-Yourself Automated Insulin Delivery system (DIY AID) use in people with type 1 diabetes.PloS one · 2022Article
- User and Healthcare Professional Perspectives on Do-It-Yourself Artificial Pancreas Systems: A Need for Guidelines.Journal of diabetes science and technology · 2022Article
- Open-source automated insulin delivery: international consensus statement and practical guidance for health-care professionals.The lancet. Diabetes & endocrinology · 2022Review
- Evaluation of Web-Based and In-Person Methods to Recruit Adults With Type 1 Diabetes for a Mobile Exercise Intervention: Prospective Observational Study.JMIR diabetes · 2021Article
- Do-It-Yourself Automated Insulin Delivery: A Leading Example of the Democratization of Medicine.Journal of diabetes science and technology · 2020Article
- Using a Do-It-Yourself Artificial Pancreas: Perspectives from Patients and Diabetes Providers.Journal of diabetes science and technology · 2020Article
- Diabetes Podcast: Do It Yourself/Open Source Artificial Pancreas Systems: Part 2.Diabetes therapy : research, treatment and education of diabetes and related disorders · 2020Article
Corrections and comments
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Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe do-it-yourself (DIY) artificial pancreas system (APS) community is led by people with diabetes (PWD) and their families. In contrast to standard models of care, in which health care professionals are responsible for the education and training of PWD and their families, within the DIY APS, community users are reliant on their peers for education and training. The provision of this support has not previously been studied. This article focuses on the role of mentors within the DIY APS community.
methodSemistructured interviews were conducted with mentors (
resultsMentors' primary motivation was altruism. An empathetic, process-focused approach was modeled by prominent mentors. The use of online forums as the primary source of user support was perceived to be an effective method for sharing the workload. Key challenges for mentors included the frequency with which users asked questions that were answered in the existing documentation, dealing with conflict and managing workload. Most participants did not perceive mentoring to be risky, but did take steps to ensure that users were taking responsibility for their own systems.
conclusionThis study is the first to examine the role of mentors within the DIY APS community and also within the broader diabetes online community. Future research might seek to quantify the empathetic, process-focused approach to mentoring.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.