ArticleBMJ paediatrics open2019
Access to paediatric palliative care in children and adolescents with complex chronic conditions: a retrospective hospital-based study in Brussels, Belgium.
Article in BMJ paediatrics open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it, 31 citations in OpenAlex.
- How are children with medical complexity being identified in epidemiological studies? A systematic review.World journal of pediatrics : WJP · 2023Pooled it
- Article
- Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence.Palliative medicine · 2024Article
- Defining and quantifying population-level need for children's palliative care: findings from a rapid scoping review.BMC palliative care · 2024Article
- Chinese and Belgian pediatricians' perspectives toward pediatric palliative care: an online survey.BMC palliative care · 2024Article
- The Quality of Life of Children Facing Life-Limiting Conditions and That of Their Parents in Belgium: A Cross-Sectional Study.Children (Basel, Switzerland) · 2023Article
- Estimating the current and future prevalence of life-limiting conditions in children in England.Palliative medicine · 2021Observational
- Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol.Contemporary clinical trials communications · 2021Article
Corrections and comments
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Authors and funding
11 authors at 6 institutions in 5 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPaediatric complex chronic conditions (CCCs) are life-limiting conditions requiring paediatric palliative care, which, in Belgium, is provided through paediatric liaison teams (PLTs). Like the number of children and adolescents with these conditions in Belgium, their referral to PLTs is unknown.
objectivesThe aim of the study was to identify, over a 5-year period (2010-2014), the number of children and adolescents (0-19 years) living with a CCC, and also their referral to PLTs.
methodsInternational Classification of Disease codes (ICD-9) corresponding to a CCC, as described by Feudtner
resultsOver 5 years (2010-2014) in the Brussels region, a total of 22 721 children/adolescents aged 0-19 years were diagnosed with a CCC. Of this number, 22 533 were identified through hospital registries and 572 through PLT registries. By comparing the registries, we found that of the 22 533 children/adolescents admitted to hospital, only 384 (1.7%) were also referred to a PLT.
conclusionIn Belgium, there may be too few referrals of children and adolescents with CCC to PLTs that ensure continuity of care.
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