ArticleResearch involvement and engagement2019
Innovating public engagement and patient involvement through strategic collaboration and practice.
Article in Research involvement and engagement, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 53 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
53 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Taking stock of psychosocial rehabilitation in children and adolescents: a systematic review with meta-analysis.Frontiers in rehabilitation sciences · 2025Pooled it
- REPRESENT recommendations: improving inclusion and trust in cancer early detection research.British journal of cancer · 2023Pooled it
- Public engagement professionals: Exploring ethical tensions in communication, engagement and co-creation.Public understanding of science (Bristol, England) · 2026Article
- Patient and Public involvement to understand and inform the co-design of how we communicate mortality risk for patients aged 90 and over considering elective total hip replacement (THR).Research involvement and engagement · 2026Article
- Layering perspectives: a structured approach to meaningful patient and public involvement and engagement in the RETURN dental trial.Research involvement and engagement · 2026Article
- Exploring how patient involvement is enacted in the Swedish national system for knowledge-driven management - "work as imagined and work as done".BMC health services research · 2026Article
- Co-designing a framework to communicate patient-centred outcomes in palliative care: involving patients and the public to reframe understanding.Journal of patient-reported outcomes · 2026Article
- A rapid evaluation of the reporting and publishing practices of patient and public involvement and engagement in health research within a UK university institute.Research involvement and engagement · 2026Review
- Barriers and solutions for healthcare professionals to involve patients as partners in oncology research: Project RISE.Future oncology (London, England) · 2026Article
- Developing a faculty simulation-based education strategy: a Delphi study to build consensus and aid decision making.Advances in simulation (London, England) · 2025Article
- Commentary - Community Involvement and Prevention Science in and with Communities - Where do we go next?Journal of prevention (2022) · 2025Article
- Patient and Public Involvement in Action: Shaping an Intergenerational Engagement Intervention in a Long-Term Care Facility in China.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- How can citizen science enhance mental health research quality: theory of change development.BMJ open · 2025Article
- Developing and Integrating Digital Sources in an Accessible and Sustainable Online Platform for Adolescents and Young Adult Cancer Survivors: Collaborative Design Approach.JMIR formative research · 2025Article
- "How can we involve Patients?" - Students' perspectives on embedding PPIE into a doctoral training centre for AI in medical diagnosis and care.Research involvement and engagement · 2025Article
- Community Collaboration in Public Health Genetic Literacy: Methods for Co-Designing Educational Resources for Equitable Genomics Research and Practice.Public health genomics · 2025Article
- Multidisciplinary perspectives on personalised prevention in youth mental health.Frontiers in digital health · 2025Article
- Series: Public engagement with research. Part 2: GPs and primary care researchers working inclusively with minoritised communities in health research to help address inequalities.The European journal of general practice · 2024Article
- Review
- Giving patients a voice for healthcare reform in Austria: the qualitative voice-study.Family practice · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient and public involvement and engagement is an important and expected component of health-related research activity in the UK. Specifically within the health research sphere, public engagement (usually defined as raising awareness of research) and patient involvement (usually defined as actively involving people in research) have traditionally been seen as separate but have much to gain from working together towards a common goal of better health outcomes for all.
methodsThis paper describes a unique approach taken by the Public Programmes Team: a small interdisciplinary team of public engagement specialists, with backgrounds in science, community development, public engagement and involvement, policy, ethics, communications, industry, museums and creative practice, embedded within translational research infrastructure and delivery in Manchester in the North West of England. We propose a new model of professional practice - a 'cycle' of engagement and involvement - innovating across the complementary fields of public engagement and patient involvement, and working inclusively and in partnership with people in health research. Further, our approach capitalises on strategic collaboration offering economies of scale and a joined up way of working. Our ambition is to boldly experiment, learn and reflect, responsibly and based on evidence and partnerships, using methods of engagement that address issues of social justice.
resultsHere, we report on preliminary case studies exemplifying the impact of our approach, and data relating to achievements and learning between April 2017 and March 2018. Informed by our findings, we propose that our approach has the potential to be replicated elsewhere.
conclusionsOur practice and the beginning of its evaluation lead us to believe that our way of working and model of professional practice - the 'cycle' of engagement and involvement - is effective in: addressing our vision of making health research relevant and inclusive for everyone; and embedding and joining up public involvement in a busy and fertile translational health research ecosystem.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.