ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2020
A qualitative analysis of the benefits and barriers of support groups for patients with brain tumours and their caregivers.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Benefits of support groups for patients living with implantable cardioverter defibrillators: a mixed-methods systematic review and meta-analysis.Open heart · 2022Pooled it
- Understanding Barriers to Caregiver Support Engagement During Their Autistic Youth's Transition to Adulthood: A Qualitative Analysis of Parental Perspectives.Journal of autism and developmental disorders · 2026Article
- A Supportive Group Intervention for Caregivers to Patients Diagnosed With Glioblastoma: Protocol for the SUGRI Study.JMIR research protocols · 2026Article
- Group-based interventions for caregivers to patients diagnosed with a brain tumor: A systematic review.Neuro-oncology practice · 2025Article
- The CARING intervention for neuro-oncology family caregivers: Randomized controlled trial feasibility, eSNAP/caregiver navigation engagement, and acceptability.Neuro-oncology practice · 2025Article
- "I Got My Trophy": The Story of Implementing a Neuro-Oncology Exercise Program from the Patient and Caregiver Lens-A Qualitative Study.Current oncology (Toronto, Ont.) · 2025Article
- Targeted Transition Readiness Workshops for Pediatric Brain Tumor Survivors: Feasibility, Acceptability, and Preliminary Effects.Current oncology (Toronto, Ont.) · 2025Article
- Empowerment among breast cancer survivors using an online peer support community.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- The impact of a primary brain tumor diagnosis on caregivers: Insights from the patients' perspective.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Protocol for evaluation of the feasibility and preliminary efficacy of a targeted transition readiness workshop intervention for pediatric brain tumor survivors.Pilot and feasibility studies · 2024Article
- Use of Immersive Virtual Reality Spaces to Engage Adolescent and Young Adult Patients With Cancer in Therapist-Guided Support Groups: Protocol for a Pre-Post Study.JMIR research protocols · 2023Article
- Characteristics of Distress and Support Group Participation in Caregivers of Older Allogeneic Hematopoietic Cell Transplantation Patients: A Single Institution Retrospective Review.Journal of the advanced practitioner in oncology · 2023Article
- Adaptation of families of adult patients with brain tumor: Partial least squares structural equation modeling.PloS one · 2023Article
- Anxiety and depression in patients with intracranial meningioma: a mixed methods analysis.BMC psychology · 2022Article
- Transportation as a barrier to colorectal cancer care.BMC health services research · 2021Article
- The benefits of support groups for caregivers of patients with brain tumors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Article
- In-home conversations of couples with advanced cancer: Support has its costs.Psycho-oncology · 2020Observational
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeBrain tumours represent a significant burden for patients and caregivers. The aims of the present study were to explore the perceived benefits of support groups for patients and their caregivers, as well as the barriers to participation, and to generate suggestions for improvement.
methodsBrain tumour patients and caregivers were recruited from the brain tumour centre at Princess Margaret Cancer Centre to participate in focus groups. Focus groups were audio-recorded, transcribed, and thematically analysed using qualitative methods. Eight patients (five who had attended the support groups and three who had not) and eight caregivers (all of whom attended the groups) participated in separate focus groups.
resultsFive major themes emerged: group cohesion (e.g., camaraderie and kinship), motivating factors to attend (e.g., loneliness), logistical factors that affected attendance (e.g., transportation), structure and content of the group (e.g., discussion topics), and suggestions for improvement (e.g., receiving personal reminders).
conclusionsThis study highlights the supportive needs of brain tumour patients and their caregivers. The key findings provide helpful information on how to maximise the benefits of support groups for these populations.
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