ArticleInternational journal of community based nursing and midwifery2019
Caregiver Burden and Its Associated Factors in Caregivers of Children and Adolescents with Chronic Conditions.
Article in International journal of community based nursing and midwifery, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 57 papers, 1 of them a synthesis that pooled it.
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Who cites it
57 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Caregiver burden in informal caregivers of cardiac patients: a mixed-methods systematic review.BMC psychology · 2026Pooled it
- Effects of the continuous care model on the lifestyle of adolescents with type 1 diabetes in Tehran clinics- an experimental study.BMC endocrine disorders · 2026Trial
- Assessing Quality of Life and Associated Factors Among Caregivers of Children With Chronic Conditions at Tamale Teaching Hospital: A Cross-Sectional Study.Health science reports · 2026Article
- Correlates of Viral Suppression in Adolescents With HIV Taking Antiretroviral Therapy in Mozambique: Results of a Multicenter Cross-Sectional Survey.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2026Article
- The Prevalence of Adverse Childhood Experiences in the Congenital Heart Disease Population in Los Angeles County.Pediatric cardiology · 2026Article
- Issues navigating the healthcare delivery system among caregivers of children and youth with special healthcare needs: a qualitative study.BMC health services research · 2026Article
- Psychosocial Impact of Celiac Disease on Primary Caregivers of Children in Jordan: A Cross-Sectional Study.Children (Basel, Switzerland) · 2026Article
- Disease burden and associated factors among caregivers of children with congenital heart disease at tertiary hospitals in Addis Ababa, Ethiopia.Scientific reports · 2026Article
- Families caring for children living with HIV/AIDS: male care burden and poor health outcomes in a low socioeconomic context of Ghana.BMC public health · 2026Article
- Parental quality of life and its influence on health-related quality of life in children with type 1 diabetes: a cross-sectional dyadic study in a multi-ethnic cohort.BMC endocrine disorders · 2026Article
- Family resilience and health-related quality of life in children with malignant bone tumors: implications for pediatric oncology nursing.Frontiers in psychology · 2026Article
- Family perspective on caring for children with chronic conditions in the pre- and trans-pandemic contexts of COVID-19.Revista da Escola de Enfermagem da U S P · 2026Article
- Caregiver Burden and Well-being of Caregivers to Hospitalized Filipino Children with Neurological Conditions: A Cross-sectional Study.Acta medica Philippina · 2026Article
- Understanding the caregiver experience: a cross-sectional study of caregiver burden among those caring for chronically ill children in Jordan.BMJ paediatrics open · 2025Article
- The relationship between caregiver burden and hope in leukemia patients: a cross-sectional study in selected referral hospitals in Tehran, Iran.BMC palliative care · 2025Article
- Congenital Central Hypoventilation Syndrome (CCHS): Patient Quality of Life and Caregiver Burden.Pediatric pulmonology · 2025Article
- How does a preference-based generic health-related quality of life measure perform in patients with a rare disease? Measurement properties of the EQ-5D-Y proxy version among underage patients with neurofibromatosis type 1.Orphanet journal of rare diseases · 2025Article
- Exploring the Parental Perspectives and Experiences With the Use of a Home Mechanical Insufflation-Exsufflation Device.Respiratory care · 2025Article
- When caring hurts: Chronic back pain, anxiety, and depression among caregivers of chronically ill children in Nigeria.PLOS mental health · 2025Article
- Family management of care for children with chronic conditions in the context of the COVID-19 pandemic.Revista brasileira de enfermagem · 2025Article
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFew studies have been conducted on the burden of care in caregivers of children with chronic illnesses. This study investigated the burden of care and associated factors in first-degree caregivers of children and adolescents with chronic conditions.
methodsA cross-sectional study was conducted from June to September 2017 on 385 first-degree caregivers of children and adolescents with chronic disorders. Data were collected using the Zarit burden inventory which assesses the caregiver burden in physical, psychological, economic, and relational areas and has a total score from 0 to 88. Scores 61-88, 41-60, 20-40, and <20 indicate severe, moderate, mild, and no burden. Data were analyzed using descriptive statistics and Chi-Square, Fisher's exact tests, t-test, analysis of variance, and multiple regression analysis.
resultsThe mean age of the caregivers and children were 38.20±8.04 and 8.90±4.90 years, respectively. Also, 33 (8.5%), 135 (35.1%), and 181 (47%) of the caregivers suffered from severe, moderate, and mild burden, and only 9.4% perceived no burden. The mean caregiver burden scores were significantly different in terms of their education (P<0.001), job status (P=0.04), financial status (P<0.001), family size (P<0.001), numbers of children (P<0.001), numbers of children with chronic illnesses (P<0.01), type of supportive resources (P=0.004), and children's education (P<0.01), type of disease (P<0.001), numbers of diseases (P<0.001), and interval of medical visits (P<0.001).
conclusionCaregivers of children and adolescents with chronic disease are under pressure. Our study showed a number of factors influencing caregiver burden. Health care providers should plan family-centered care plans to decrease the burden of care in caregivers of children with chronic conditions.
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