ArticleBMC palliative care2019
How to help researchers in palliative care improve responsiveness to migrants and other underrepresented populations: developing and testing a self-assessment instrument.
Article in BMC palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Palliative Care Utilization Among Non-Western Migrants in Europe: A Systematic Review.Journal of immigrant and minority health · 2022Pooled it
- Considerations of equity in the development of tools that identify and respond to end-of-life carer support needs: a scoping review.BMJ open · 2026Article
- Article
- Interactions between self-help and hospice and palliative care - Opportunities, barriers and needs (Self-Pall): A study protocol.PloS one · 2026Article
- Article
- Exploring long-term cancer survivors' care experiences and unmet needs: protocol for a qualitative study.BMC cancer · 2024Article
- Non-kin caregivers of terminally ill people: Contributions, experiences, and needs: A protocol for a mixed-methods study.PloS one · 2024Article
- Suicide assistance in Germany: A protocol for a multi-perspective qualitative study to explore the current practice.PloS one · 2024Observational
- Possible alleviation of symptoms and side effects through clinicians' nocebo information and empathy in an experimental video vignette study.Scientific reports · 2022Article
- Long-distance caregiving at the end of life: a protocol for an exploratory qualitative study in Germany.BMC palliative care · 2022Article
- The role of research in improving responsiveness of palliative care to migrants and other underserved populations in the Netherlands: a qualitative interview study.BMC palliative care · 2021Article
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Authors and funding
7 authors.
Funding
Abstract
backgroundEuropean migrant populations are aging and will increasingly be in need of palliative and end of life care. However, migrant patients are often underrepresented in palliative care research populations. This poses a number of drawbacks, such as the inability to generalize findings or check the appropriateness of care innovations amongst migrant patients. The aim of this study was to develop a self-assessment instrument to help palliative care researchers assess and find ways to improve their projects' diversity responsiveness in light of the aging migrant population, and determine whether in addition to older migrants other groups should be included in the instrument's focus.
methodsAfter developing a concept instrument based on the standards for equity in healthcare for migrants and other vulnerable groups, literature review and interviews with palliative care researchers, we conducted a Delphi study to establish the content of the self-assessment instrument and used think aloud methods in a study involving seven projects for usability testing of the self-assessment instrument.
resultsA Delphi panel of 22 experts responded to a questionnaire consisting of 3 items concerning the target group and 30 items on diversity responsiveness measures. Using an a priori set consensus rate of 75% to include items in the self-assessment instrument, experts reached consensus on 25 out of 30 items on diversity responsiveness measures. Findings furthermore indicate that underserved groups in palliative care other than migrant patients should be included in the instrument's focus. This was stressed by both the experts involved in the Delphi study and the researchers engaged in usability testing. Usability testing additionally provided insights into learnability, error-rate, satisfaction and applicability of the instrument, which were used to revise the self-assessment instrument.
conclusionsThe final self-assessment instrument includes a list of 23 diversity responsiveness measures to be taken at varying stages of a project, and targets all groups at risk of being underrepresented. This instrument can be used in palliative care research to assess diversity responsiveness of projects and instigate action for improvement.
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