ArticleCanadian journal of kidney health and disease2019
Use of Electronic Patient Reported Outcomes in Clinical Nephrology Practice: A Qualitative Pilot Study.
Article in Canadian journal of kidney health and disease, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- Rooting patient-reported outcomes in clinical care: a scoping review on benefits, challenges, and opportunities for patients and clinicians.Health and quality of life outcomes · 2025Article
- Article
- Cross-cultural validation of the Short-Form Vascular Access Questionnaire.The journal of vascular access · 2024Article
- Cross-cultural validation of the Portuguese version of the Dialysis Symptom Index for haemodialysis patients.Journal of research in nursing : JRN · 2024Article
- From electronic health records to clinical management systems: how the digital transformation can support healthcare services.Clinical kidney journal · 2023Review
- Global use of electronic patient-reported outcome systems in nephrology: a mixed methods study.BMJ open · 2023Review
- Reducing the pressures of outpatient care: the potential role of patient-reported outcomes.Journal of the Royal Society of Medicine · 2023Review
- Rapid decline in kidney function is associated with rapid deterioration of health-related quality of life in chronic kidney disease.Scientific reports · 2023Article
- Knowledge Translation in Glomerulonephritis: Successes in Translational Research From the Bench to Bedside.Canadian journal of kidney health and disease · 2023Review
- Electronic Patient-Reported Outcomes in Nephrology: Focus on Hemodialysis.Journal of clinical medicine · 2022Review
- Article
- Outcomes after kidney transplantation, let's focus on the patients' perspectives.Clinical kidney journal · 2021Review
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundUse of patient-reported outcome measures (PROM) in clinical practice can offer clinicians important information about the impact of illness on patients and their quality of life. Electronic reporting of patient-reported outcomes (ePROs) provide quick access of this information to the health care team. Although this type of information is acknowledged to be critical to not only improving the quality of care but also involving patients in care planning, little is known about how ePRO reports can be used in nephrology clinics to enhance person-centered care.
objectiveThe purpose of this research was to examine how ePROs were used in home dialysis clinics.
designA pilot qualitative research design was employed.
settingThe study was conducted in 2 home dialysis clinics over 6 months. PATIENTS: A total of 99 home dialysis patients and 12 nurses participated in the study. MEASUREMENTS: Patients completed 2 ePROs (the Edmonton Symptom Assessment System revised for renal patients and Kidney Disease Quality of Life-36) prior to their clinic appointment, and results were given to their health care providers. Nurses saw patients first, along with ePRO data. Patients and nurses consented to having their clinic interactions observed and audio recorded (n = 169).
methodsSummative content analysis was used to synthesize the data.
resultsThe ePRO data were used to discuss 24 specific issues (brought up a total of 456 times over 165 interactions), most frequently: itchiness (n = 55), appetite (n = 51), problems with sleeping (n = 50), tiredness (n = 46), and shortness of breath (n = 45) as well as overall patient health and the general effects of kidney disease on the patient's daily life. The issues that most often prompted a change in care plan, referral to another health care professional, or further assessment included itching (n = 23), depression (n = 18), tiredness (n = 13), sleeping (n = 12), anxiety (n = 11), and disease interfering with daily life (n = 7). LIMITATIONS: Limitations include the duration of follow-up (6 months), the restriction to 2 home dialysis clinics, and the potential for the Hawthorne effect due to observation.
conclusionsUse of these ePROs in the home dialysis clinics provided useful information that guided focused assessments and augmented standard assessments to support person-centered care. Further studies are warranted to identify whether this practice offers benefits over usual care.
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