Evidence map›Paper›PMID 31626397›Full record

ArticlePsycho-oncology2020

Development and usability testing of the e-EXCELS tool to guide cancer survivorship follow-up care.

Denalee M O'Malley, Stacy N Davis, Katie A Devine, Brittany Sullivan, Alicja Bator, Lynn Clemow, Jeanne M Ferrante, Patricia A Findley, Suzanne M Miller, Shawna V Hudson

Abstract read
In one paragraph

Article in Psycho-oncology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Effectiveness of eHealth interventions in long-term follow-up care for breast and gynecological cancer survivors: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Pooled it
  2. Pooled it
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  6. eHealth interventions to support colorectal cancer patients' self-management after discharge from surgery-an integrative literature review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
    Review
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  10. User-Centered Development and Patient Acceptability Testing of a Health-Coaching Intervention to Enhance Cancer Survivorship Follow-up in Primary Care.Journal of cancer education : the official journal of the American Association for Cancer Education · 2022
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Denalee M O'MalleyRutgers Biomedical and Health Sciences, Rutgers, The State University of New Jersey, New Brunswick, New Jersey.ORCID 0000-0001-7493-447X
Stacy N DavisRutgers Biomedical and Health Sciences, Rutgers, The State University of New Jersey, New Brunswick, New Jersey.
Katie A DevineRutgers Biomedical and Health Sciences, Rutgers, The State University of New Jersey, New Brunswick, New Jersey.
Brittany SullivanRutgers Biomedical and Health Sciences, Rutgers, The State University of New Jersey, New Brunswick, New Jersey.
Alicja BatorRutgers Biomedical and Health Sciences, Rutgers, The State University of New Jersey, New Brunswick, New Jersey.
Lynn ClemowRutgers Biomedical and Health Sciences, Rutgers, The State University of New Jersey, New Brunswick, New Jersey.
Jeanne M FerranteRutgers Biomedical and Health Sciences, Rutgers, The State University of New Jersey, New Brunswick, New Jersey.ORCID 0000-0003-0222-5396
Patricia A FindleyRutgers School of Social Work, Rutgers, The State University of New Jersey, New Brunswick, New Jersey.
Suzanne M MillerFox Chase Cancer Center/Temple Health, Philadelphia, Pennsylvania.
Shawna V HudsonRutgers Biomedical and Health Sciences, Rutgers, The State University of New Jersey, New Brunswick, New Jersey.

Funding

TRANSCRIPTIONAL PROFILINGP30CA072720 · NCI · UNIV OF MED/DENT NJ-R W JOHNSON MED SCH · PI Tracie Saunders · 1997 to 2026
$94.5M
Re-entry Supplement to Extended Cancer Education for Longer-term Survivors (EXCELS) In Primary CareR01CA176838 · NCI · RBHS-ROBERT WOOD JOHNSON MEDICAL SCHOOL · PI HUDSON, SHAWNA V. · 2013 to 2017
$3.8M
NCI NIH HHS CA 1766838NCI NIH HHS P30 CA072720NCI NIH HHS R01 CA176838
6 · The paper itself

Abstract

objectiveThe aim of this study is to describe a user-centered (e.g., cancer survivors and clinicians) development process of an eHealth tool designed to facilitate self-management of cancer survivorship follow-up care.

methodsGuided by Cognitive-Social Health Information Processing (C-SHIP) model and informed by core self-management skills, we engaged in a user-centered design process. In phase I, we conducted in-depth interviews with survivors of breast (n = 33), prostate (n = 4), and colorectal (n = 6) cancers, and (n = 9) primary care providers to develop content and design of the web tool. Phase II utilized iterative user testing interviews (n = 9) to test the web-based tool prototype. Data from both phases were independently coded using a template/content analytic approach.

resultsThe top 5 functions identified in phase I for the web-based platform included: (a) educational materials to learn and prepare for health encounters (80%); (b) questions for health providers (74%); (c) ability to track contact information of providers (67%); (d) provide general information (64%); and, (e) support information (62%). Users of the prototype reported patient burden, tool fatigue, introduction timing of the tool, relevance, and security/privacy as concerns in phase II.

conclusionsThis study demonstrates the value of using a theoretically informed and user-centered design process to develop relevant and patient-centered eHealth resources to support cancer survivorship. A larger study is needed to establish the efficacy of this eHealth tool as an intervention to improve adherence to follow-up care guidelines.

Indexed as

SurvivorshipAftercareCancer SurvivorsFemaleHumansMaleMiddle AgedNeoplasmsPatient PreferenceSelf-ManagementTelemedicineUser-Computer Interfacebreast cancer survivorscancercancer survivorshipcolorectal cancer survivorseHealthmHealthoncologyprostate cancer survivorsself-management

Identifiers

PMID31626397
PMCPMC7279518

What OpenQuestion holds

Textmetadata
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Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.