ArticleActa paediatrica (Oslo, Norway : 1992)2020
Survey of paediatricians caring for children with life-limiting conditions found that they were involved in advance care planning.
Article in Acta paediatrica (Oslo, Norway : 1992), 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 4 of them syntheses that pooled it.
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Who cites it
15 citing papers in PubMed, 4 syntheses or guidelines pooled it, 34 citations in OpenAlex.
- Parental experiences in pediatric advance care planning for children with life-limiting illnesses: a qualitative meta-synthesis.BMC palliative care · 2026Pooled it
- A Dutch paediatric palliative care guideline: a systematic review and recommendations on advance care planning and shared decision-making.BMC palliative care · 2024Pooled it
- Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review.Palliative medicine · 2021Pooled it
- Evaluation showed that stakeholders valued the support provided by the Implementing Pediatric Advance Care Planning Toolkit.Acta paediatrica (Oslo, Norway : 1992) · 2021Pooled it
- The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility.BMC pediatrics · 2022Trial
- Palliative care provision for children in general practice: A retrospective cohort study.Palliative & supportive care · 2026Article
- Pediatric advance care planning: a mixed-methods evaluation of documentation and sharing in current practice.BMC palliative care · 2026Article
- How are agency and autonomy understood in children's palliative and end-of-life care?: A narrative review.Palliative care and social practice · 2026Review
- Experiences with a national team-based learning program for advance care planning in pediatric palliative care.BMC palliative care · 2024Article
- 'My life is a mess but I cope': An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition.Palliative medicine · 2024Article
- Age-Appropriate Advance Care Planning in Children Diagnosed with a Life-Limiting Condition: A Systematic Review.Children (Basel, Switzerland) · 2022Review
- Initiation of paediatric advance care planning: Cross-sectional survey of health professionals reported behaviour.Child: care, health and development · 2022Article
- Parents' experiences of initiation of paediatric advance care planning discussions: a qualitative study.European journal of pediatrics · 2022Article
- Congruence Gaps Between Adolescents With Cancer and Their Families Regarding Values, Goals, and Beliefs About End-of-Life Care.JAMA network open · 2020Article
- Survey of paediatricians caring for children with life-limiting conditions found that they were involved in advance care planning.Acta paediatrica (Oslo, Norway : 1992) · 2020Article
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimAdvance care planning (ACP) is a strategy to align future care and treatment with preferences of patients and families. This study assesses the experiences of ACP among paediatricians caring for children with life-limiting conditions.
methodsPaediatricians from five Dutch university hospitals and the national oncology centre completed a survey during May to September 2017, which investigated experiences with ACP in their most recent case of a deceased child and with ACP in general.
resultsA total of 207 paediatricians responded (36%). After exclusion of responses with insufficient data (n = 39), 168 were analysed (29%). These included experiences with an individual case in 86%. ACP themes were discussed with parents in all cases. Topics common to many cases were diagnosis, life expectancy, care goals, the parent's fears and code status. ACP conversations occurred with children in 23% of cases. The joy in living was the most frequent topic. The frequency of ACP conversations was insufficient according to 49% of the respondents. In 60%, it was stated that ACP has to result in a documented code status.
conclusionPaediatricians reported having ACP conversations mainly with parents focusing on medical issues. There was limited insight into the child's preferences for care and treatment.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.