ArticleJournal of autism and developmental disorders2020
Children with an Autism Spectrum Disorder and Their Caregivers: Capturing Health-Related and Care-Related Quality of Life.
Article in Journal of autism and developmental disorders, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05620368 (Mindfulness-Based Online Support Program for Mothers of Children With Disabilities), which is not on this map. Cited by 39 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Mindfulness-Based Online Support Program for Mothers of Children With Disabilities
Who cites it
39 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Exploring the Impact of Augmented Reality in Children and Adolescents with Autism Spectrum Disorder: A Systematic Review.International journal of environmental research and public health · 2020Pooled it
- The impact of schizotypy on quality of life among adults with autism spectrum disorder.BMC psychiatry · 2022Trial
- The Impact of Caring for a Child With Juvenile Idiopathic Arthritis on Caregiver Quality of Life.ACR open rheumatology · 2026Article
- Quality of Life and Societal Cost in Autistic Children: An Exploratory Comparative Study Pre- and Post-Diagnosis.Journal of autism and developmental disorders · 2026Article
- An Analysis of the Psychometric Properties of the Pediatric Inventory for Parents: Short Form Among Caregivers of Children Diagnosed With Autism Spectrum Disorder.Journal of autism and developmental disorders · 2026Article
- Mothers' knowledge and home care practices for children with autism spectrum disorder in Diwaniyah, Iraq.Frontiers in child and adolescent psychiatry · 2026Article
- Between neuroaffirmation and access: Parents' experiences of autism caregiving in England.PloS one · 2026Article
- Resilience interventions for the family with autistic children: a systematic review.Frontiers in psychology · 2026Review
- Factors related to quality of life in caregivers of children with autism spectrum disorder: emphasizing challenges in the context of Eastern China.BMC public health · 2025Article
- Quality of Life and Its Associated Correlates of Parents of Children on the Autism Spectrum in Singapore.Journal of autism and developmental disorders · 2025Article
- Quality of life and associated factors among primary caregivers of children and adolescents with neurodevelopmental disorders attending public hospitals in Addis Ababa, Ethiopia: a cross-sectional study.International health · 2025Article
- Article
- The CarerQol Instrument: A Systematic Review, Validity Analysis, and Generalization Reliability Study.Journal of clinical medicine · 2025Review
- The economic impact of caregiving for individuals with Angelman syndrome in the United States: results from a caregiver survey.Orphanet journal of rare diseases · 2025Article
- Exploring Social Support and Quality of Life Among Mothers of Children with Autism Spectrum Disorders: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2025Article
- Risk factors for low knowledge and negative attitudes among caregivers of children with autism spectrum disorder in Iraq: a multi-centre cross-sectional study.Frontiers in psychiatry · 2025Article
- The association between intolerance of uncertainty and psychological burden among caregivers of children with autism and the impact on their quality of life.Frontiers in psychiatry · 2025Article
- Patterns of needs among Iraqi families caring for children with autism spectrum disorder: a cross-sectional study.Frontiers in psychiatry · 2025Article
- Leisure, Employment, Community Participation, and Quality of Life in Primary Caregivers of Autistic Children: A Qualitative Study.Journal of autism and developmental disorders · 2024Article
- A Cost-Utility Analysis of Add-On Cannabidiol Versus Usual Care Alone for the Treatment of Seizures Associated with Tuberous Sclerosis Complex in England and Wales.PharmacoEconomics - open · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
This study investigated health-related QoL (HRQoL) and care-related quality of life (CarerQol) in clinically referred children with an autism spectrum disorder (ASD), and their primary and secondary caregivers. The EuroQol five-dimensional (EQ-5D) and the CarerQol questionnaires were used to respectively measure health-related QoL and care-related QoL. Primary caregivers reported pain/discomfort (42%) and anxiety/depression (40%). In caring, they mostly experienced problems in the relationship with the child (84%), and in combining care with daily activities (51%). Children with ASD had a relevantly lower QoL. Despite negative effects, almost all caregivers (96%) derived fulfillment from caring for their affected children. HRQoL and CarerQol reports of primary caregivers and children were correlated, both providing useful information to ASD measurement and treatment.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.