ArticleResearch and practice in thrombosis and haemostasis2019
The experience of postpartum bleeding in women with inherited bleeding disorders.
Article in Research and practice in thrombosis and haemostasis, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
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Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Perceptions and experiences of the prevention, detection, and management of postpartum haemorrhage: a qualitative evidence synthesis.The Cochrane database of systematic reviews · 2023Pooled it
- The experiences and attitudes of hemophilia carriers around pregnancy: A qualitative systematic review.Journal of thrombosis and haemostasis : JTH · 2020Pooled it
- A Rare Case of Secondary Postpartum Hemorrhage Due to Intrauterine Hematoma and Uterine Scar Dehiscence.Cureus · 2026Article
- Postpartum well-being in hemophilia carriers and women with von Willebrand disease: insights from patient-reported outcome measures.Research and practice in thrombosis and haemostasis · 2026Article
- Multidisciplinary perinatal care for women with bleeding disorders.Research and practice in thrombosis and haemostasis · 2025Article
- Article
- Proactive systematic hemophilia carrier screening: a step toward gender equity in hemophilia care.Blood advances · 2024Observational
- Tranexamic acid for management of heavy vaginal bleeding: barriers to access and myths surrounding its use.Research and practice in thrombosis and haemostasis · 2024Article
- Laboratory-based inequity in thrombosis and hemostasis: review of the evidence.Research and practice in thrombosis and haemostasis · 2023Review
- What have we learned about the patient's experience of von Willebrand disease? A focus on women.Hematology. American Society of Hematology. Education Program · 2022Review
- "If I wasn't a girl": Experiences of adolescent girls with heavy menstrual bleeding and inherited bleeding disorders.Research and practice in thrombosis and haemostasis · 2022Article
- A qualitative study on the experiences of haemophilia carriers before, during and after pregnancy.Haemophilia : the official journal of the World Federation of Hemophilia · 2021Article
- Healthcare provider perspectives on inequities in access to care for patients with inherited bleeding disorders.PloS one · 2020Article
- The experience of postpartum bleeding in women with inherited bleeding disorders.Research and practice in thrombosis and haemostasis · 2019Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionPostpartum hemorrhage (PPH) affects 6% of all deliveries and is the leading cause of maternal death worldwide (19.7%). The incidence of PPH in women with inherited bleeding disorders is substantially greater than in unaffected women; however, estimates of relative risk are highly variable. To date, their experience with postpartum bleeding has not been well studied.
objectiveWe set out to explore the experience with, understanding of, and attitudes regarding postpartum bleeding among women with inherited bleeding disorders.
methodsThis qualitative study involved focused interviews of women with inherited bleeding disorders about postpartum bleeding. Women followed at a multidisciplinary clinic for women with inherited bleeding disorders who have experienced childbirth within the last 5 years were included in the study. The interview style was semistructured. Interviews continued until the point of saturation of themes. All interviews were transcribed and then analyzed using qualitative descriptive analysis.
resultsWe interviewed 10 women with inherited bleeding disorders. Themes that emerged were normalization of excessive vaginal bleeding, difficulty distinguishing normal from abnormal postpartum bleeding, and empowerment of women by having a clear delivery care plan.
conclusionIn this study, women with inherited bleeding disorders were desensitized to heavy vaginal blood loss. As a result, excessive postpartum bleeding was not recognized by many of the women we interviewed. Results highlight the importance of a multidisciplinary delivery care plan for these women. Findings revealed key areas for targeted multidisciplinary intervention.
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