ArticlePatient related outcome measures2019
Hemophilia and sexual health: results from the HERO and B-HERO-S studies.
Article in Patient related outcome measures, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- Psychometric properties and outcomes of the PROMIS Sexual Function and Satisfaction measures in individuals with congenital bleeding disorders.Research and practice in thrombosis and haemostasis · 2026Article
- Prevalence and associated factors of sexual dysfunction in female patients with immune thrombocytopenia: a longitudinal follow-up study.BMC women's health · 2026Article
- A qualitative study on the impact of hemophilia on sexual functioning and well-being in Dutch men.Journal of patient-reported outcomes · 2025Article
- Development and validation of the Child Hemophilia Treatment Experience Measure: A new observer-reported outcome measure.Haemophilia : the official journal of the World Federation of Hemophilia · 2025Article
- Article
- Teenagers and Adolescents with Hemophilia-Need for a Specific Approach.Journal of clinical medicine · 2024Review
- A Retrospective Observational Study of Quality of Life in a Northern Greece Population of People with Haemophilia.Life (Basel, Switzerland) · 2024Article
- Sexual activity and the adolescent with haemophilia.Acta bio-medica : Atenei Parmensis · 2023Review
- Sexual issues in people with haemophilia: Awareness and strategies for overcoming communication barriers.Haemophilia : the official journal of the World Federation of Hemophilia · 2022Article
- Prevalence, burden and treatment effects of vaginal bleeding in women with (suspected) congenital platelet disorders throughout life: a cross-sectional study.British journal of haematology · 2022Article
- Content analysis of identity challenges in patients with haemophilia: A qualitative study.Nursing open · 2021Article
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8 authors.
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Abstract
backgroundSexual health plays a primary role in quality of life (QoL) for many people, including those with hemophilia; however, there is little information available about sexual relationships and satisfaction in patients with hemophilia.
methodsTo address this issue, the Hemophilia Experiences, Results and Opportunities (HERO) and the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) studies included questions from the Male Sexual Health Questionnaire (MSHQ).
resultsAlthough these data were not statistically analyzed for comparisons between the 3 populations (HERO, HERO US only, and B-HERO-S), in general, participants in the HERO survey appeared to be more satisfied with their sexual relationship than participants in the B-HERO-S survey. In addition, many patients, especially those outside the United States, reported that they had not discussed sexual health with their doctor or other members of the hemophilia treatment center team. While the topic of sexual health has been infrequently explored in men with hemophilia, this is the first time it has been investigated in women with hemophilia.
conclusionThe results of these studies demonstrate that the impact of hemophilia extends to intimacy and suggest the need for large-scale studies in additional countries to explore further the factors associated with sexual health issues in people with hemophilia.
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