Evidence map›Paper›PMID 31615796›Full record

ArticleBMJ open2019

Factors associated with patient-reported likelihood of using online self-care interventions: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

Linda Kwakkenbos, Julie Cumin, Marie-Eve Carrier, Susan J Bartlett, Vanessa L Malcarne, Luc Mouthon, Warren R Nielson, François Rannou, Joep Welling, Brett D Thombs and 1 more

Abstract readMulticenter Study
In one paragraph

Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Trial
  2. Review
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Linda KwakkenbosBehavioural Science Institute, Clinical Psychology, Radboud University, Nijmegen, The Netherlands.
Julie CuminLady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Québec, Canada.
Marie-Eve CarrierLady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Québec, Canada.
Susan J BartlettDepartment of Medicine, McGill University, Monteal, Québec, Canada.
Vanessa L MalcarneDepartment of Psychology, San Diego State University, San Diego, California, USA.
Luc MouthonAssistance Publique-Hôpitaux de Paris (AP-HP), Université Paris Descartes, Paris, France.
Warren R NielsonBeryl & Richard Ivey Rheumatology Day Programs, St. Joseph's Health Care, London, Ontario, Canada.
François RannouAssistance Publique-Hôpitaux de Paris (AP-HP), Université Paris Descartes, Paris, France.
Joep WellingNVLE Dutch Patient Organization for Systemic Autoimmune Diseases, Utrecht, The Netherlands.
Brett D ThombsLady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Québec, Canada.ORCID 0000-0002-5644-8432
SPIN Investigators

Funding

Institutional Career Development CoreKL2TR003168 · NCATS · UNIVERSITY OF TEXAS HLTH SCI CTR HOUSTON · PI MILLER, CHARLES C · 2019 to 2023
$4.9M
CIHR PJT-148504CIHR PJT-149073CIHR TR3-119192NCATS NIH HHS KL2 TR003168
6 · The paper itself

Abstract

objectivesThe Scleroderma Patient-centered Intervention Network (SPIN) Cohort uses the cohort multiple randomised controlled trial design to embed trials of online self-care interventions for people living with systemic sclerosis (SSc; scleroderma). To offer interventions to patients interested in using them, participants complete signalling items that query about the likelihood that patients would agree to participate in nine different hypothetical online programmes addressing common SSc-related problems. It is not known what factors influence patient-reported interest in participating in a particular online intervention and if intervention-specific signalling questions provide unique information or replicate broader characteristics, such as overall willingness to participate or self-efficacy. This study assessed factors that explain responses to intervention-specific signalling items.

designCross-sectional survey.

settingSPIN Cohort participants enrolled at 42 centres from Canada, the USA, the UK, France, Spain and Mexico who completed study questionnaires from March 2014 to January 2018 were included. MEASURES: Demographic and disease characteristics, self-efficacy and symptoms related to each specific intervention were completed in addition to signalling items. General likelihood of using interventions was calculating by taking the mean score of the remaining signalling questions.

participants1060 participants with complete baseline data were included in the analyses.

resultsFor all individual signalling questions, controlling for other variables, the mean of the remaining signalling questions was the strongest predictor (standardised regression coefficient β from 0.61 (sleep) to 0.80 (self-management)). Smaller, but statistically significant, associations were found with the symptom associated with the respective signalling question and with general self-efficacy for 7 of 9 signalling questions.

conclusionsThe main factor associated with patients' interest in participating in a disease-specific online self-care intervention is their general interest in participating in online interventions. Factors that may influence this general interest should be explored and taken into consideration when inviting patients to try online interventions.

Indexed as

Patient Reported Outcome MeasuresCanadaCohort StudiesCross-Sectional StudiesFemaleFranceHumansInternationalityInternetLinear ModelsMaleMexicoMultiple SclerosisMultivariate AnalysisPatient-Centered CareSelf Careclinical trialscmRCTcohort multiple RCTsclerodermasystemic sclerosis

Identifiers

PMID31615796
PMCPMC6797412

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.