Evidence map›Paper›PMID 31612518›Full record

ArticleJournal of advanced nursing2020

Creating opportunities for personal empowerment: Symptom and technology management resources (COPE-STAR) for caregivers of children who require medical technology.

Regena Spratling, Melissa Spezia Faulkner, Iris Feinberg, Matthew J Hayat

Abstract read
In one paragraph

Article in Journal of advanced nursing, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Trial
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Regena SpratlingSchool of Nursing, Byrdine F. Lewis College of Nursing and Health Professions, Georgia State University, Atlanta, GA, USA.ORCID https://orcid.org/0000-0001-9807-3280
Melissa Spezia FaulknerSchool of Nursing, Byrdine F. Lewis College of Nursing and Health Professions, Georgia State University, Atlanta, GA, USA.
Iris FeinbergAdult Literacy Research Center, College of Education and Human Development, Georgia State University, Atlanta, GA, USA.
Matthew J HayatBiostatistics, Department of Population Health Sciences, School of Public Health, Byrdine F. Lewis College of Nursing & Health Professions (Joint), Georgia State University, Atlanta, GA, USA.

Funding

Web-based Modules to Support Young Children Who Require Medical Technology and Their CaregiversR15NR018037 · NINR · GEORGIA STATE UNIVERSITY · PI SPRATLING, REGENA · 2018 to 2018
$423k
NIH HHSNINR NIH HHS 1R15NR018037-01NINR NIH HHS R15 NR018037
6 · The paper itself

Abstract

aimThis research protocol addresses the development of web-based modules for the 'creating opportunities for personal empowerment: symptom and technology management resources' intervention with caregivers of children who require medical technology. The commonly experienced symptoms of fever and increased respiratory symptoms (coughing, wheezing, increased secretions), and the care of technologies (tracheostomy tubes, respiratory equipment and feeding tubes) are addressed in this nurse-led and nurse-developed intervention.

designThe purpose of this study was to develop web-based intervention modules and obtain review by expert and caregiver reviewers using a systematic, structured process and form.

methodsThe intervention includes evidenced-based, theory-based, modules that address the child's most common emotions and behavioural responses with the management of their symptoms and technologies using a web-based format. To establish fidelity of the intervention, expert and caregiver reviewers (e.g. caregivers of children with multiple complex chronic illnesses and technologies) will review the modules that will then be refined prior to feasibility testing. Funding for the study began in July 2018. DISCUSSION: The intervention development led by nurses entails an evidence-based literature review; development of scripts with appropriate health literacy level; and content by experts, photography, and videography; production of video modules and creation of a website for modules. IMPACT: This nursing intervention addresses the educational needs and skills considered essential and most applicable to caregivers of children who require medical technology to improve self-management of their child's symptoms and technology in the home setting. The information obtained from this study will be valuable to nursing, other healthcare providers and healthcare systems in planning and implementing programs and services for these children and for nurse researchers designing intervention studies for children with multiple complex chronic illnesses.

trial registrationThis study is not designated as a clinical trial per NIH/NINR study and grant proposal guidelines.

Indexed as

EmpowermentEquipment and SuppliesAdultCaregiversChildChild, PreschoolFeasibility StudiesHumansInfantInternetcaregiverschildrencomplex chronic illnessfeeding tubeintervention developmentmedical technologynursingtechnological dependencetracheostomy

Identifiers

PMID31612518
PMCPMC7053529

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.