ArticleJournal of the American Geriatrics Society2020
Trends and Factors Associated with Place of Death for Individuals with Dementia in the United States.
Article in Journal of the American Geriatrics Society, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 4 of them syntheses that pooled it.
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Who cites it
39 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Unequal ends: A systematic review comparing place of death in rural, coastal and urban areas for older people with dementia to cancer.Palliative medicine · 2026Pooled it
- Impact of interprofessional collaboration between long-term care physicians and medical specialists on quality of care and quality of life of long-term care facility residents: a systematic review.European geriatric medicine · 2026Pooled it
- Rural and urban differences in quality of dementia care of persons with dementia and caregivers across all domains: a systematic review.BMC health services research · 2023Pooled it
- Hospice interventions for persons living with dementia, family members and clinicians: A systematic review.Journal of the American Geriatrics Society · 2022Pooled it
- Bridging policy and practice: Determinants of place of death for palliative care recipients in Taiwan.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Place of death for people with dementia: A scoping review.PloS one · 2026Article
- Bedbound Status During the Last Year of Life Among Community-Dwelling Older Adults.JAMA network open · 2025Article
- The National Dementia Workforce Study: Methods for Surveying Community Clinicians Who Provide Care to People With Dementia.Journal of the American Geriatrics Society · 2025Article
- Wealth Disparities in End-of-Life Symptom Burden Among Older Adults.JAMA network open · 2025Article
- Trends and Disparities in Alzheimer's Disease Mortality in the United States: The Impact of COVID-19.NeuroSci · 2025Article
- Social Connectedness Among Nursing Home Residents with Dementia by Hospice Enrollment.The journal of nursing home research sciences · 2025Article
- Article
- Autophagia in a Patient with Dementia and Hemineglect: A Case Report.Clinical practice and cases in emergency medicine · 2024Article
- Challenges in recognizing and discussing changes in a resident's condition in the palliative phase: focus group discussions with nursing staff working in nursing homes about their experiences.BMC palliative care · 2024Article
- Knowledge Gaps in End-Of-Life Family Caregiving for Persons Living With Dementia: A Study of Hospice Clinician Perspectives.The American journal of hospice & palliative care · 2024Article
- Place-based, intersectional variation in caregiving patterns and health outcomes among informal caregivers in the United States.Frontiers in public health · 2024Article
- Dementia caregiver burdens predict overnight hospitalization and hospice utilization.Palliative & supportive care · 2023Article
- Public Health and Palliative Care.Clinics in geriatric medicine · 2023Review
- Challenges and strategies among family care partners of community-dwelling persons with dementia nearing end of life.Journal of the American Geriatrics Society · 2023Article
- Translation, cultural adaptation and recommendations for clinical implementation of the Abbey Pain Scale to a Swedish dementia care context.Nursing open · 2023Article
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo assess trends and factors associated with place of death among individuals with Alzheimer's disease-related dementias (ADRD).
designCross-sectional analysis.
settingCenters for Disease Control and Prevention Wide-ranging OnLine Data for Epidemiologic Research, 2003-2017.
participantsNatural deaths occurring between 2003 and 2017 for which ADRD was determined to be the underlying cause. MEASUREMENTS: Place of death was categorized as hospital, home, nursing facility, hospice facility, and other. Aggregate data included age, race, Hispanic ethnicity, sex, urbanization, and census division. Individual-level predictors included age, race, Hispanic ethnicity, sex, marital status, and education.
resultsFrom 2003 to 2017, nursing facility and hospital deaths declined from 65.7% and 12.7% to 55.0% and 8.0% while home and hospice facility deaths increased from 13.6% and .2% to 21.9% and 6.2%, respectively. Odds of hospital and hospice facility deaths declined with age while odds of nursing facility deaths increased with age. Male sex was associated with higher odds of hospital or hospice facility death and lower odds of home or nursing facility death. Nonwhite race, Hispanic ethnicity, and being married were associated with increased odds of hospital or home death and reduced odds of nursing facility death. More education was associated with higher odds of home or in a hospice facility death and reduced odds of death in a nursing facility or hospital. Significant disparities in place of death by urban-rural status were also noted.
conclusionAs ADRD deaths at home increase, the need for caregiver support and home-based palliative care may become more critical. Further research should examine the care preferences and experiences of ADRD patients and caregivers, the financial impact of home death on families and insurers, and explore factors that may contribute to differences in actual and preferred place of death. J Am Geriatr Soc 68:250-255, 2020.
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