SynthesisJournal of public health (Oxford, England)2021
Identifying evidence of effectiveness in the co-creation of research: a systematic review and meta-analysis of the international healthcare literature.
Synthesis in Journal of public health (Oxford, England), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 117 papers, 12 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
117 citing papers in PubMed, 12 syntheses or guidelines pooled it.
- Cocreation and codesign in maternal health: processes, outcomes and implementation challenges.BMJ quality & safety · 2026Pooled it
- Digital Interventions Targeting Parents to Improve Early Childhood Movement, Nutrition, and Sleep Behaviors: Systematic Review.Journal of medical Internet research · 2026Pooled it
- How Do Participatory Citizenship Models Inform Co-production in Health Research? A Systematic Review.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Understanding the Use of Community Involvement in Rural Food Environment Modifications: A Systematic Review.Current nutrition reports · 2025Pooled it
- Conducting co-creation for public health in low and middle-income countries: a systematic review and key informant perspectives on implementation barriers and facilitators.Globalization and health · 2024Pooled it
- Establishing a Health CASCADE-Curated Open-Access Database to Consolidate Knowledge About Co-Creation: Novel Artificial Intelligence-Assisted Methodology Based on Systematic Reviews.Journal of medical Internet research · 2023Pooled it
- Barriers to and Facilitators of Digital Health Among Culturally and Linguistically Diverse Populations: Qualitative Systematic Review.Journal of medical Internet research · 2023Pooled it
- Stakeholder preferences for attributes of digital health technologies to consider in health service funding.International journal of technology assessment in health care · 2023Pooled it
- Evaluating the role and effectiveness of co-produced community-based mental health interventions that aim to reduce suicide among adults: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- How are health research partnerships assessed? A systematic review of outcomes, impacts, terminology and the use of theories, models and frameworks.Health research policy and systems · 2022Pooled it
- Co-creation of healthier food retail environments: A systematic review to explore the type of stakeholders and their motivations and stage of engagement.Obesity reviews : an official journal of the International Association for the Study of Obesity · 2022Pooled it
- Identifying evidence of the effectiveness of photovoice: a systematic review and meta-analysis of the international healthcare literature.Journal of public health (Oxford, England) · 2022Pooled it
- Effects of a psychoeducational group intervention for adults diagnosed with ADHD: a pilot randomized controlled study.BMC psychiatry · 2025Trial
- Evaluation of a Novel eHealth Tool for Pulmonary Rehabilitation in People With Chronic Obstructive Pulmonary Disease: Randomized Controlled Pilot and Feasibility Trial.JMIR formative research · 2025Trial
- Bright light therapy versus physical exercise to prevent co-occurring depression in adolescents and young adults with attention-deficit/hyperactivity disorder: a multicentre, three-arm, randomised controlled, pilot phase-IIa trial.European archives of psychiatry and clinical neuroscience · 2025Trial
- Effectiveness of digital co-creation platform in remote pulmonary rehabilitation for older adults with chronic obstructive pulmonary disease: a randomized controlled trial.Frontiers in public health · 2025Trial
- Trial
- Examining the sustainability and effectiveness of co-created physical activity interventions in vocational education and training: a multimethod evaluation.BMC public health · 2022Trial
- eHealth to Improve Psychological Functioning and Self-Management of People With Chronic Kidney Disease: A Randomized Controlled Trial.Psychosomatic medicineTrial
- "It gives me confidence and value": evaluating All_Ears@UoS patient and public involvement and engagement (PPIE) group three years on.Research involvement and engagement · 2026Article
57 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundTo investigate and address the evidence gap on the effectiveness of co-creation/production in international health research.
methodsAn initial systematic search of previous reviews published by 22 July 2017 in Medline, Embase, PsycINFO, Scopus and Web of Science. We extracted reported aims, elements and outcomes of co-creation/production from 50 reviews; however, reviews rarely tested effectiveness against intended outcomes. We therefore checked the reference lists in 13 included systematic reviews that cited quantitative studies involving the public/patients in the design and/or implementation of research projects to conduct meta-analyses on their effectiveness using standardized mean difference (SMD).
resultsTwenty-six primary studies were included, showing moderate positive effects for community functions (SMD = 0.56, 95%CI = 0.29-0.84, n = 11) and small positive effects for physical health (SMD = 0.25, 95%CI = 0.07-0.42, n = 9), health-promoting behaviour (SMD = 0.14, 95%CI = 0.03-0.26, n = 11), self-efficacy (SMD = 0.34, 95%CI = 0.01-0.67, n = 3) and health service access/receipt (SMD = 0.36, 95%CI = 0.21-0.52, n = 12). Non-academic stakeholders that co-created more than one research stage showed significantly favourable mental health outcomes. However, co-creation was rarely extended to later stages (evaluation/dissemination), with few studies specifically with ethnic minority groups.
conclusionsThe co-creation of research may improve several health-related outcomes and public health more broadly, but research is lacking on its longer term effects.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.