Evidence map›Paper›PMID 31607810›Full record

ArticleJournal of the Medical Library Association : JMLA2019

Evaluation of the scope, quality, and health literacy demand of Internet-based anal cancer information.

Rebecca Charow, Michelle Snow, Sameera Fathima, Meredith E Giuliani, Kate McEwan, Jordana Winegust, Janet Papadakos

Abstract read
In one paragraph

Article in Journal of the Medical Library Association : JMLA, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed.

  1. Exploring the value of using patient-oriented MRI reports in clinical practice - a pilot study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022
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  12. Identifying gaps in consumer health library collections: a retrospective review.Journal of the Medical Library Association : JMLA · 2021
    Review
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  15. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Rebecca CharowPrincess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada, rebecca.charow@uhnresearch.ca.
Michelle SnowPrincess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada, michelle.snow@uhn.ca.
Sameera FathimaPrincess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada, sameera09@gmail.com.
Meredith E GiulianiPrincess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada, meredith.giuliani@rmp.uhn.on.ca.
Kate McEwanPrincess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada, highlandkate@sympatico.ca.
Jordana WinegustPrincess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada, jordana.winegust@kidshelpphone.ca.
Janet PapadakosPrincess Margaret Cancer Centre, University Health Network, and Patient Education, Cancer Care Ontario, Toronto, ON, Canada, janet.papadakos@uhnresearch.ca.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesAs there is a dearth of information about anal cancer available at cancer centers, patients often use the Internet to search for information. This is problematic, however, because the quality of information on the Internet is variable, and the health literacy demanded is higher than the average patrons' capacity. The purposes of this study were to (1) determine the most common websites with anal cancer consumer health information, (2) identify the supportive care needs that each website addresses, and (3) evaluate the websites' quality and health literacy demand.

methodsMedical Subject Headings (MeSH) entry terms for "Anus Neoplasms" were used in Google Canada to identify websites. Seven domains of supportive care needs were defined using Fitch's Supportive Care Framework for Cancer Care. Website quality was evaluated using the DISCERN tool. Health literacy demand was assessed using readability calculators, where best practice dictates a grade 6 or lower, and the Patient Education Material Assessment Tool (PEMAT) that computes a percentage score in 2 domains, understandability and actionability, with 80% being an acceptable score.

resultsEighteen unique websites were evaluated. One website met health literacy best practices and had a "good" quality rating. Most websites addressed only 1 supportive care domain (61%), were of "fair" quality (67%), had readability scores higher than grade 6 (89%), and had PEMAT scores ranging from 41%-92% for understandability and 0-70% for actionability.

conclusionThe information gaps on anal cancer websites warrant a need for more health literate anal cancer health information on the Internet.

Indexed as

Anus NeoplasmsConsumer Health InformationData AccuracyHealth LiteracyHumansInformation DisseminationInternetPatient Education as Topic

Identifiers

PMID31607810
PMCPMC6774557

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.