ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2020
Capturing the patient voice: implementing patient-reported outcomes across the health system.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 47 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
47 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Efficacy and safety outcomes reported in human leptospirosis studies to inform the development of a core outcome and core outcome measurement set: A systematic review.PLoS neglected tropical diseases · 2026Pooled it
- Patient reported outcomes in oncology: changing perspectives-a systematic review.Health and quality of life outcomes · 2022Pooled it
- Translating clinical and patient-reported data to tailored shared decision reports with predictive analytics for knee and hip arthritis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Trial
- Development and Validation of a Novel, Disease-Specific, Caregiver-Reported Outcome Measure: The Duchenne Muscular Dystrophy Caregiver Reported-Health Index (DMDCR-HI).Muscle & nerve · 2026Article
- A Qualitative Evaluation of Structural and Social Determinants of Health, Black Race, and Perspectives of Prostate Cancer Risk and Early Detection.Journal of racial and ethnic health disparities · 2026Article
- Article
- Shall we rush to be brief? Methodological and clinical costs of shortening insomnia scales.Sleep & breathing = Schlaf & Atmung · 2026Article
- Eighteen Years of Measuring Treatment Satisfaction in Clinical Research: A Scoping Review of Instruments and Contexts of Use.Patient preference and adherence · 2026Review
- Interpreting discordant results in mixed-method research: data triangulation, participant voices, and epistemic issues in health research.International journal of social research methodology · 2025Article
- Patient and public health perspectives to inform expansion of hepatitis B treatment guidelines.The lancet. Gastroenterology & hepatology · 2025Review
- Enhancing provider adoption of patient-reported outcome measures (PROMs) through implementation science: insights from two international workshops.Journal of patient-reported outcomes · 2025Article
- Expert consensus on implementing patient-reported outcomes in telehealth: findings from an international Delphi study.Journal of patient-reported outcomes · 2025Article
- Rural-Urban Disparities in Cancer Care-Analyzing Routinely Collected Patient-Reported Outcomes. A Cross-Sectional Study.Cancer medicine · 2025Article
- Applicability of the PRISMA-COSMIN guidelines for systematic reviews of outcome measurement instruments to ISOQOL's special interest group for clinical practice.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- The association of diabetes mellitus and routinely collected patient-reported outcomes in patients with cancer. A real-world cohort study.Cancer medicine · 2024Article
- General population normative values for the EORTC QLQ-C30 by age, sex, and health condition for the French general population.Journal of patient-reported outcomes · 2024Article
- The first steps in the development of a cancer-specific patient-reported experience measure item bank (PREM-item bank): towards dynamic evaluation of experiences.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Review
- Evaluating the pragmatic characteristics of advance care planning outcome measures in dementia clinical trials: A scoping review.Journal of the American Geriatrics Society · 2023Article
- How to make PROMs work: qualitative insights from leaders at United States hospitals with successful PROMs programs.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Measuring What Matters: A Qualitative Study of the Relevance and Clinical Utility of PROMIS Surveys in Systemic Lupus Erythematosus.The Journal of rheumatology · 2023Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
purposeSupporting the capture and use of patient-reported outcomes (PROs) at the point-of-care enriches information about important clinical and quality of life outcomes. Yet the ability to scale PROs across healthcare systems has been limited by knowledge gaps around how to manage the diversity of PRO uses and leverage health information technology. In this study, we report learnings and practice insights from UW Medicine's practice transformation efforts to incorporate patient voice into multiple areas of care.
methodsUsing a participatory, action research approach, we engaged with UW Medicine clinical and administrative stakeholders experienced with PRO implementation to inventory PRO implementations across the health system, characterize common clinical uses for PROs, and develop recommendations for system-wide governance and implementation of PROs.
resultsWe identified a wide breadth of PRO implementations (n = 14) in practice and found that nearly half (47%) of employed PRO measures captured shared clinical domains (e.g., depression). We developed three vignettes (use cases) that illustrate how users interact with PROs, characterize common ways PRO implementations support clinical care across the health system (1) Preventive care, (2) Chronic/Specialty care, and (3) Surgical/Interventional care), and elucidate opportunities to enhance efficient PRO implementations through system-level standards and governance.
conclusionsPractice transformation efforts increasingly require integration of the patient voice into clinical care, often through the use of PROs. Learnings from our work highlight the importance of proactively considering how PROs will be used across the layers of healthcare organizations to optimize the design and governance of PROs.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.