ArticleHealth expectations : an international journal of public participation in health care and health policy2021
'Sick and tired': Patients reported reasons for not participating in clinical psychiatric research.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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The trial behind it
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Who cites it
10 citing papers in PubMed, 18 citations in OpenAlex.
- Effect of different recruiter attire on trial participation in Lesotho: a randomized study within a trial.Trials · 2026Trial
- Testing the feasibility of passive sensing among adolescents: Implications for mental health.Journal of psychopathology and clinical science · 2025Article
- Nonadherence to Diabetes Complications Screening in a Multiethnic Asian Population: Protocol for a Mixed Methods Prospective Study.JMIR research protocols · 2025Article
- How do negative symptoms and social cognitive impairments overlap? Clustering analyses on patients living with schizophrenia-spectrum disorder.Social cognitive and affective neuroscience · 2025Article
- Prevalence of painful temporomandibular disorders in individuals with post-traumatic headache attributed to mild traumatic brain injury.Clinical oral investigations · 2024Article
- Engagement of people with lived experience in studies published in high-impact psychiatry journals: meta-research review.Research involvement and engagement · 2024Review
- The Utility of Neuromuscular Assessment to Identify ADHD Among Patients with a Complex Symptom Picture.Journal of attention disorders · 2024Article
- 'Sick and tired': Patients reported reasons for not participating in clinical psychiatric research.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Perspectives on Recruitment and Representativeness in Forensic Psychiatric Research.Frontiers in psychiatry · 2021Article
- Developing a Theory-Informed Smartphone App for Early Psychosis: Learning Points From a Multidisciplinary Collaboration.Frontiers in psychiatry · 2020Article
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundMeaningful and generalizable research depends on patients' willingness to participate. Studies often fail to reach satisfactory representativeness.
objectiveThis paper aims to investigate reasons for not participating in research among young adult patients with psychiatric illness.
methodA quantitative cross-sectional study was performed based on questionnaires reported on by 51 psychiatric patients (14 males, 35 females and two unspecified) who had previously declined participation in an ongoing research project. Thereafter, a qualitative interview with subsequent content analysis was conducted with ten additional patients (five males, five females).
resultsThe questionnaires indicate being 'too tired/too sick to participate' as the most common barrier. Lack of time and fear of needles were other common barriers. Lack of trust or belief in the value of research was less inhibitive. In the interviews, disabling psychiatric symptoms were confirmed as the main reason for not participating. Several potential ways to increase participation were identified, such as simplification of procedures and information as well as providing rewards and feedback, and building relationships before asking.
conclusionThis study is unusual as it focuses on the group of young people attending psychiatry outpatient clinics we know very little about - those who do not partake in research. Our results indicate that fatigue and sickness reduce research participation and identify factors that may facilitate enrolment of this important group.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.