Evidence map›Paper›PMID 31599737›Full record

ArticleJMIR research protocols2019

Improving the Health of Individuals With Cerebral Palsy: Protocol for the Multidisciplinary Research Program MOVING ON WITH CP.

Ann Alriksson-Schmidt, Johan Jarl, Elisabet Rodby-Bousquet, Annika Lundkvist Josenby, Lena Westbom, Kate Himmelmann, Kristine Stadskleiv, Pia Ödman, Ingrid Svensson, Christian Antfolk and 4 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in JMIR research protocols, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.2field-weighted citation impact, top 46% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 5 institutions in 2 countries.

Ann Alriksson-SchmidtDepartment of Orthopedics, Faculty of Medicine, Lund University, Lund, Sweden.ORCID https://orcid.org/0000-0001-9430-263X
Johan JarlDepartment of Health Economics, Faculty of Medicine, Lund University, Lund, Sweden.ORCID https://orcid.org/0000-0002-9274-2479
Elisabet Rodby-BousquetDepartment of Orthopedics, Faculty of Medicine, Lund University, Lund, Sweden.ORCID https://orcid.org/0000-0001-8373-1017
Annika Lundkvist JosenbyDepartment of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.ORCID https://orcid.org/0000-0001-9694-9349
Lena WestbomChildren's Hospital, Skåne University Hospital, Lund, Sweden.ORCID https://orcid.org/0000-0001-6138-4843
Kate HimmelmannDepartment of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden.ORCID https://orcid.org/0000-0002-3959-9554
Kristine StadskleivDepartment of Clinical Neurosciences for Children, Oslo University Hospital, Oslo, Sweden.ORCID https://orcid.org/0000-0002-5478-5689
Pia ÖdmanDepartment of Medical and Health Sciences, Faculty of Medicine, Linköping University, Linköping, Sweden.ORCID https://orcid.org/0000-0001-7117-3468
Ingrid SvenssonDepartment of Biomedical Engineering, Lund University, Lund, Sweden.ORCID https://orcid.org/0000-0001-6081-5525
Christian AntfolkDepartment of Biomedical Engineering, Lund University, Lund, Sweden.ORCID https://orcid.org/0000-0001-6783-0461
Nebojsa MalesevicDepartment of Biomedical Engineering, Lund University, Lund, Sweden.ORCID https://orcid.org/0000-0001-8140-5453
Ira JeglinskyDepartment of Health and Welfare, Arcada University of Applied Sciences, Helsinki, Finland.ORCID https://orcid.org/0000-0002-2162-4168
Sanjib SahaDepartment of Health Economics, Faculty of Medicine, Lund University, Lund, Sweden.ORCID https://orcid.org/0000-0001-8649-0773
Gunnar HägglundDepartment of Orthopedics, Faculty of Medicine, Lund University, Lund, Sweden.ORCID https://orcid.org/0000-0002-9593-4927
Lund University · SEArcada University of Applied Sciences · FILinköping University · SEUniversity of Gothenburg · SEUppsala University · SE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCerebral palsy (CP) is one of the most common early onset disabilities globally. The causative brain damage in CP is nonprogressive, yet secondary conditions develop and worsen over time. Individuals with CP in Sweden and most of the Nordic countries are systematically followed in the national registry and follow-up program entitled the Cerebral Palsy Follow-Up Program (CPUP). CPUP has improved certain aspects of health care for individuals with CP and strengthened collaboration among professionals. However, there are still issues to resolve regarding health care for this specific population.

objectiveThe overall objectives of the research program MOVING ON WITH CP are to (1) improve the health care processes and delivery models; (2) develop, implement, and evaluate real-life solutions for Swedish health care provision; and (3) evaluate existing health care and social insurance benefit programs and processes in the context of CP.

methodsMOVING ON WITH CP comprises 9 projects within 3 themes. Evaluation of Existing Health Care (Theme A) consists of registry studies where data from CPUP will be merged with national official health databases, complemented by survey and interview data. In Equality in Health Care and Social Insurance (Theme B), mixed methods studies and registry studies will be complemented with focus group interviews to inform the development of new processes to apply for benefits. In New Solutions and Processes in Health Care Provision (Theme C), an eHealth (electronic health) procedure will be developed and tested to facilitate access to specialized health care, and equipment that improves the assessment of movement activity in individuals with CP will be developed.

resultsThe individual projects are currently being planned and will begin shortly. Feedback from users has been integrated. Ethics board approvals have been obtained.

conclusionsIn this 6-year multidisciplinary program, professionals from the fields of medicine, social sciences, health sciences, and engineering, in collaboration with individuals with CP and their families, will evaluate existing health care, create conditions for a more equal health care, and develop new technologies to improve the health care management of people with CP. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/13883.

Indexed as

cerebral palsydisabilityhealthhealth caremultidisciplinarypain

Identifiers

PMID31599737
PMCPMC6811769
OpenAlexW2955084093

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.