Evidence map›Paper›PMID 31595377›Full record

Trial reportJournal of neurology2020

Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study.

Christian Philipp Kamm, L Barin, C Gobbi, C Pot, P Calabrese, A Salmen, L Achtnichts, J Kesselring, M A Puhan, V von Wyl and 1 more

Registry-linked trialAbstract readClinical Trial
PubMed Publisher
In one paragraph

Trial report in Journal of neurology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02980640 (Swiss Multiple Sclerosis Registry), which is not on this map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
1.4field-weighted citation impact, top 19% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02980640 recruitingnot on this map

Swiss Multiple Sclerosis Registry

Typeobservational_patient_registrySponsorSwiss Multiple Sclerosis RegistryRan2016 to 2041Enrolled10,000ConditionsMultiple Sclerosis
3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 14 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 9 institutions in 2 countries.

Christian Philipp KammDepartment of Neurology, Inselspital, University Hospital Bern and University of Bern, Bern, Switzerland. christian.kamm@luks.ch.ORCID http://orcid.org/0000-0002-3906-0161
L BarinEpidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, Switzerland.
C GobbiFaculty of Biomedical Sciences, Università Della Svizzera Italiana (USI), 6900, Lugano, Switzerland.
C PotService of Neurology and Neuroscience Research Center, Lausanne University Hospital, and University of Lausanne, Lausanne, Switzerland.
P CalabreseBehavioral Neurology and Neuropsychology, Division of Molecular and Cognitive Neuroscience, Department of Psychology, University of Basel, Basel, Switzerland.
A SalmenDepartment of Neurology, Inselspital, University Hospital Bern and University of Bern, Bern, Switzerland.
L AchtnichtsDepartment of Neurology, Cantonal Hospital Aarau, Aarau, Switzerland.
J KesselringRehabilitation Centre, Kliniken Valens, Valens, Switzerland.
M A PuhanEpidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, Switzerland.
V von WylEpidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, Switzerland.
Swiss Multiple Sclerosis Registry (SMSR)
University of Zurich · CHUniversity of Bern · CHUniversity of Basel · CHValens Clinics · CHLaboratory for Biomedical Neurosciences · CHUniversity of Lausanne · CHKantonsspital Aarau · CHUniversità della Svizzera italiana · CHUniversity Hospital of Bern · CH

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPatient satisfaction is predictive of adherence, malpractice litigation and doctor-switching.

objectiveTo investigate which factors of the first diagnostic consultation (FDC) influence patient satisfaction and which topics persons with multiple sclerosis (PwMS) thought were missing.

methodsUsing retrospective patient-reported data of the Swiss Multiple Sclerosis Registry from PwMS with relapsing disease onset, we fitted ordered logistic regression models on satisfaction with FDC, with socio-demographic and FDC features as explanatory factors.

results386 PwMS diagnosed after 1995 were included. Good satisfaction with the FDC was associated with a conversation more than 20 min [multivariable odds ratio, 95% confidence interval 3.9 (2.42; 6.27)], covering many topics [1.35 (1.19; 1.54) per additional topic], the presence of a significant others [1.74 (1.03; 2.94) ], and shared decision making [3.39 (1.74; 6.59)]. Not receiving a specific diagnosis was main driver for low satisfaction [0.29 (0.15; 0.55)]. Main missing topics concerned long-term consequences (reported by 6.7%), psychological aspects (6.2%) and how to obtain support and further information (5.2%).

conclusionsA conversation of more than 20 min covering many MS relevant topics, a clear communication of the diagnosis, the presence of a close relative or significant other, as well as shared decision making enhanced patient satisfaction with the FDC. ClinicalTrials.gov Identifier: NCT02980640.

Indexed as

Decision Making, SharedHealth CommunicationPatient SatisfactionPhysician-Patient RelationsReferral and ConsultationRegistriesAdolescentAdultAgedChildChild, PreschoolFemaleFollow-Up StudiesHealth Care SurveysHumansMaleDiagnosis communicationFirst diagnostic consultationMultiple sclerosisPatient satisfactionRegistriesShared decision making

Identifiers

PMID31595377
OpenAlexW2980177640

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.