ArticleJournal of the American Medical Informatics Association : JAMIA2020
A step closer to nationwide electronic health record-based chronic disease surveillance: characterizing asthma prevalence and emergency department utilization from 100 million patient records through a novel multisite collaboration.
Article in Journal of the American Medical Informatics Association : JAMIA, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- Deploying the REACHnet Multi-State EHR-Based Network for Disease Surveillance (MENDS) node: lessons learned and tools utilized.JAMIA open · 2026Article
- Chronic Disease Monitoring: Methodology for Classification Error and Self-Selection Bias Correction in Clinical Laboratory Data.Healthcare (Basel, Switzerland) · 2025Article
- Linking Ambient NO2 Pollution Measures with Electronic Health Record Data to Study Asthma Exacerbations.AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science · 2023Article
- In-home environmental exposures predicted from geospatial characteristics of the built environment and electronic health records of children with asthma.Annals of epidemiology · 2022Article
- Establishing a National Cardiovascular Disease Surveillance System in the United States Using Electronic Health Record Data: Key Strengths and Limitations.Journal of the American Heart Association · 2022Article
- Common and Unique Barriers to the Exchange of Administrative Healthcare Data in Environmental Public Health Tracking Program.International journal of environmental research and public health · 2021Article
- The Cosmos Collaborative: A Vendor-Facilitated Electronic Health Record Data Aggregation Platform.ACI open · 2021Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThe study sought to assess the feasibility of nationwide chronic disease surveillance using data aggregated through a multisite collaboration of customers of the same electronic health record (EHR) platform across the United States. MATERIALS AND
methodsAn independent confederation of customers of the same EHR platform proposed and guided the development of a program that leverages native EHR features to allow customers to securely contribute de-identified data regarding the prevalence of asthma and rate of asthma-associated emergency department visits to a vendor-managed repository. Data were stratified by state, age, sex, race, and ethnicity. Results were qualitatively compared with national survey-based estimates.
resultsThe program accumulated information from 100 million health records from over 130 healthcare systems in the United States over its first 14 months. All states were represented, with a median coverage of 22.88% of an estimated state's population (interquartile range, 12.05%-42.24%). The mean monthly prevalence of asthma was 5.27 ± 0.11%. The rate of asthma-associated emergency department visits was 1.39 ± 0.08%. Both measures mirrored national survey-based estimates. DISCUSSION: By organizing the program around native features of a shared EHR platform, we were able to rapidly accumulate population level measures from a sizeable cohort of health records, with representation from every state. The resulting data allowed estimates of asthma prevalence that were comparable to data from traditional epidemiologic surveys at both geographic and demographic levels.
conclusionsOur initiative demonstrates the potential of intravendor customer collaboration and highlights an organizational approach that complements other data aggregation efforts seeking to achieve nationwide EHR-based chronic disease surveillance.
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