SynthesisPalliative & supportive care2020
Impact of informal cancer caregiving across the cancer experience: A systematic literature review of quality of life.
Synthesis in Palliative & supportive care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06433349 (A Multi-center Investigation of Family Health, Needs, Perceived Support, Self-efficacy and Quality of Life During the Cancer Trajectory), which is not on this map. Cited by 79 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Multi-center Investigation of Family Health, Needs, Perceived Support, Self-efficacy and Quality of Life During the Cancer Trajectory: A Longitudinal Mixed Methods Study Among Danish Cancer Patients and Their Caregivers
Who cites it
79 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Optimizing NCCN distress thermometer use in real-world settings: a systematic review and thematic synthesis of the literature.Journal of cancer survivorship : research and practice · 2026Pooled it
- The Role of Social Support in the Experience of Informal Caregivers of Cancer Patients: An Umbrella Review.Psycho-oncology · 2026Pooled it
- Dietary Quality and Intake of Cancer Caregivers: A Systematic Review of Quantitative Studies and Recommendations for Future Research.Cancer medicine · 2025Pooled it
- Impact of a psychoeducational intervention to improve caregiver knowledge and attitudes toward palliative cancer care.Patient education and counseling · 2025Trial
- A sequential multiple assignment randomized trial of symptom management for cancer survivors during treatment and their informal caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Trial
- Association Between Health-Related Quality of Life In Patients with Colorectal Cancer and Their Informal Caregivers.Advances in therapy · 2026Article
- The unbalanced needs and perceived supply of supportive care in family caregivers of patients with multiple myeloma: a cross-sectional study.BMC palliative care · 2026Article
- Health- and Work-Related Outcomes in Partners of Cancer Survivors: A Prospective Cohort Study.Journal of occupational rehabilitation · 2026Article
- Multidisciplinary management of advanced ovarian cancer in Spain: expert recommendations for achieving maximum survival and improving patient care.Clinical & translational oncology : official publication of the Federation of Spanish Oncology Societies and of the National Cancer Institute of Mexico · 2026Review
- Psychosocial Impact Following Acute Hospitalization Among Patients With Hematologic Malignancies and Their Family Caregivers: A Content Analysis.Psycho-oncology · 2026Article
- Evaluating an AI-Enabled Mobile Mental Health Monitoring Tool Among Family Caregivers of Adults Living With Cancer: Single-Arm Feasibility and Acceptability Trial Protocol.JMIR research protocols · 2026Article
- Examining the quality of life in caregivers of patients with urologic cancer: A cross-sectional study in Crete, Greece.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- "The Day He Fell Ill, We Turned on a Switch…Now, Everything Is My Responsibility": Scoping Review of Qualitative Studies Among Partners of Patients with Cancer.Current oncology (Toronto, Ont.) · 2026Review
- Association of Multi-Level LGBTQ+ Stigma and Hypervigilance With Health Outcomes Among LGBTQ+ Cancer Caregivers.Psycho-oncology · 2026Article
- Observational
- The Provision of Social Support in an Online Support Forum for Caregivers of People With Comorbid Dementia and Cancer: Content Analysis Study.JMIR cancer · 2025Article
- Study protocol for a pilot randomized trial building resiliency among caregivers of cancer curvivors and metavivors.Contemporary clinical trials communications · 2025Article
- The hidden economic burden of cancer caring.Cancer · 2025Article
- Defining Family-Centered Cancer Care: A Group Concept Mapping Study.Psycho-oncology · 2025Article
- Developing Burdens in Caring for a Relative with a Cancer Diagnosis: A Qualitative Study of Lived Experiences of Family Caregivers in Saudi Arabia.Nursing reports (Pavia, Italy) · 2025Article
19 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
objectiveInformal caregiving may likely increase as the number of cancer survivors grows. Caregiving responsibilities can impact caregivers' quality of life (QOL). Understanding the current state of the science regarding caregiving QOL could help inform future research and intervention development.
methodsA systematic literature review in PubMed/Medline examined research on QOL among informal cancer caregivers and related psychosocial health outcomes. Original research articles in English, published between 2007 and 2017 about caregivers (aged >18 years) of adult cancer patients in the United States were included. Abstracted articles were categorized according to caregiving recipient's phase of survivorship (acute, middle to long-term, end of life/bereavement).
resultsOf 920 articles abstracted, 60 met inclusion criteria. Mean caregiver age ranged from 37 to 68 with the majority being female, non-Hispanic white, with at least a high school degree, and middle income. Almost half of the studies focused on caregivers who provided care for survivors from diagnosis through the end of active treatment. Studies examined physical health, spirituality, psychological distress, and social support. Differences in QOL were noted by caregiver age, sex, and employment status. SIGNIFICANCE OF
resultsAdditional research includes the examination of the needs of diverse cancer caregivers and determines how additional caregiver characteristics (e.g., physical functioning, financial burden, etc.) affect QOL. This includes studies examining caregiver QOL in the phases following the cessation of active treatment and assessments of health systems, support services, and insurance to determine barriers and facilitators needed to meet the immediate and long-term needs of cancer caregivers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.