ArticleBMJ open2019
Health and wellbeing of people with intellectual disability in New South Wales, Australia: a data linkage cohort.
Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.
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Who cites it
26 citing papers in PubMed, 53 citations in OpenAlex.
- Use of Health Services by People With Dementia Who Self-Harm in New South Wales, Australia: A Data Linkage Study.International journal of geriatric psychiatry · 2026Article
- Characteristics associated with the use of specialized mental healthcare by Norwegian adults with intellectual disability: a cross-sectional study.BMC health services research · 2026Article
- Healthcare Utilisation in Ageing Adults With Intellectual Disability: Longitudinal Evidence From Five Waves of IDS-TILDA.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Co-Producing a Patient Reported Experience Measure (PREM) With and for People With Intellectual Disability.Health expectations : an international journal of public participation in health care and health policy · 2026Article
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- Co-Producing Patient-Reported Experience Measures With People With Intellectual Disability to Improve Healthcare Quality and Outcomes: The 'Listen to Me' Project Protocol.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Article
- Methods used to construct disability indicators in linked administrative datasets: a systematic scoping review.Population health metrics · 2025Article
- Mortality in people living with dementia who self-harmed: An Australian data linkage study.The Australian and New Zealand journal of psychiatry · 2024Article
- Substance use-related problems in mild intellectual disability: A Swedish nationwide population-based cohort study with sibling comparison.JCPP advances · 2024Article
- Cohort profile: understanding health service system needs for people with intellectual disability using linked data in New South Wales, Australia.Epidemiology and health · 2024Article
- Factors associated with acute care service use after epilepsy hospitalisation in people with intellectual disability.Journal of intellectual disability research : JIDR · 2023Article
- Article
- Freeman Center for intellectual and developmental disabilities: Patient-centered interdisciplinary care.Health care transitions · 2023Article
- Article
- Reported clinical incidents of children with intellectual disability: A qualitative analysis.Developmental medicine and child neurology · 2022Article
- The Intriguing Diagnosis of Lung Cancer in a Psychiatry Inpatient Unit: A Reflection Through a Case Report.Cureus · 2022Article
- Functional neurological disorders: an Australian interdisciplinary perspective.The Medical journal of Australia · 2022Article
- Exploring the victim offender overlap among people with an intellectual disability.Journal of applied research in intellectual disabilities : JARID · 2022Article
- Inequities in quality and safety outcomes for hospitalized children with intellectual disability.Developmental medicine and child neurology · 2022Article
Corrections and comments
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Authors and funding
17 authors at 5 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposePeople with intellectual disability (ID) experience high rates of physical and mental health problems, while access to appropriate healthcare is often poor. This cohort was established to develop an epidemiological profile related to the health, health service use, disability services, mortality and corrective services records of people with ID.
participantsThe cohort contains 92 542 people with ID (40% females) with a median age of 23 years (IQR: 12-43 years) and 2 004 475 people with a neuropsychiatric or developmental disorder diagnosis (50% females) with a median age of 51 years (IQR: 29-73 years) from New South Wales, Australia. The whole sample contains records for 2 097 017 individuals with most data sets spanning financial years 1 July 2001 to 30 June 2016. A wide range of data from linked population data sets are included in the areas of disability, health, corrective services and targeted specialist support services in public schools, Public Guardian and Ombudsman services. FINDINGS TO DATE: This study includes one of the largest cohorts of people with ID internationally. Our data have shown that the presence of ID is significantly associated with emergency department presentations and psychiatric readmissions after the first psychiatric admission based on a subcohort of people with a psychiatric admission. Adults with ID experience premature mortality and over-representation of potentially avoidable deaths compared with the general population. FUTURE PLANS: Within the health service system, we will examine different components, that is, inpatient, emergency adult services, children and younger people services and costs associated with healthcare as well as mortality, cause and predictors of death. The neuropsychiatric and developmental disorders comparison cohort allows comparisons of the physical health, mental health and service use profiles of people with ID and those with other neuropsychiatric disorders.
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