ArticlePloS one2019
Experiences, needs, and preferences for follow-up after stroke perceived by people with stroke and healthcare professionals: A focus group study.
Article in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.
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Who cites it
22 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Unmet care needs of community-dwelling stroke survivors: a systematic review of quantitative studies.BMJ open · 2021Pooled it
- The Unmet Needs of Community-Dwelling Stroke Survivors: A Systematic Review of Qualitative Studies.International journal of environmental research and public health · 2021Pooled it
- Nurses' and occupational therapists' experiences of conducting a home-based psychosocial intervention following stroke: a qualitative process evaluation.BMC health services research · 2021Trial
- Rehabilitation needs of older adults with cognitive impairment following ischemic stroke: a qualitative study.Annals of medicine · 2026Article
- Rehabilitation utilisation up to 24 months after stroke: a register-based cohort study in southern Sweden.European stroke journal · 2026Article
- Utilization of rehabilitation health professions' services in chronic stroke: A scoping review.BMC health services research · 2026Article
- Can Survivors of Stroke Use a Co-Designed Website Aimed at Improving Physical Activity Levels and Diet Quality to Reduce the Risk of Recurrent Stroke? A Feasibility and Usability Study.International journal of behavioral medicine · 2026Article
- Global expert consensus on the importance of secondary stroke prevention: challenges, care coordination and unmet needs for non-cardioembolic ischaemic stroke survivors.European stroke journal · 2026Article
- 'I imagine teams!' - exploring the potential of team-based long-term brain injury rehabilitation in North Norway.BMC health services research · 2025Article
- What Is Shared in an Online Peer-Support Group Run by Stroke Survivors? An Exploratory Study With a Participatory Approach.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Identifying mediators of healthy lifestyle adoption after stroke: a focus group study using a Theoretical Domains Framework guided analysis.BMC neurology · 2025Article
- The Lived Experience of Participating in Online Peer-To-Peer Groups After Acquired Brain Injury: Phenomenological Study.Journal of medical Internet research · 2025Article
- Adapting a Telehealth Physical Activity and Diet Intervention to a Co-Designed Website for Self-Management After Stroke: Tutorial.Journal of medical Internet research · 2024Article
- The Online Health Information-Seeking Behaviors of People Who Have Experienced Stroke: Qualitative Interview Study.JMIR formative research · 2024Article
- Experiences of chain of care and rehabilitation after stroke: a qualitative study of persons discharged to skilled nursing facilities before returning home.Journal of rehabilitation medicine · 2024Article
- Implementation of evidence-based interventions according to the Swedish National Guidelines for Strokecare: a nationwide survey among physiotherapists.Journal of rehabilitation medicine · 2024Article
- Article
- Patients' Perspectives Regarding Digital Health Technology to Support Self-management and Improve Integrated Stroke Care: Qualitative Interview Study.Journal of medical Internet research · 2023Article
- Perspectives of clinicians and survivors on the continuity of service provision during rehabilitation after acquired brain injury.PloS one · 2023Article
- Topics Mentioned by Stroke Patients during Supportive Phone Calls-Implications for Individualized Aftercare Programs.Healthcare (Basel, Switzerland) · 2022Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe aim of this study was to explore the experiences, needs, and preferences regarding follow-up perceived by people with stroke and healthcare professionals.
methodsThis is a qualitative exploratory study using focus groups. Patients and healthcare professionals, participating in a clinical visit in primary care or specialised care, were purposively sampled. Data were analysed using a framework of analysis developed by Krueger.
resultsFocus groups were conducted with two patient groups (n = 10, range 45-78 years) and two multidisciplinary healthcare professional groups (n = 8, range 35-55 years). The overarching theme elucidates stroke as a long-term condition requiring complex follow-up. Three organisational themes and six subthemes were identified. People with stroke discovered feelings and changes after returning home. In daily life, problems and feelings of abandonment became evident. Participants expressed experiences of unequal access to health care services. Barriers for accessing appropriate treatment and support included difficulties in communicating one's needs and lack of coherent follow-up. Follow-up activities were well functioning in certain clinics but did not provide continuity over the long term. Participants made suggestions for a comprehensive, planned, and tailored follow-up to meet patient needs.
conclusionComprehensive long-term follow-up that is accessible to all patients is essential for equal support. Our findings raised awareness about problems discovered after returning home and the obstacles individuals face in communicating their needs. Structured follow-up, which is individually tailored, can empower patients.
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