Evidence map›Paper›PMID 31571842›Full record

ArticleClinical interventions in aging2019

The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia.

Lauren Yates, Emese Csipke, Esme Moniz-Cook, Phuong Leung, Holly Walton, Georgina Charlesworth, Aimee Spector, Eef Hogervorst, Gail Mountain, Martin Orrell

Open access · goldAbstract read
In one paragraph

Article in Clinical interventions in aging, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed, 2 pooled it
10.4field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed, 2 syntheses or guidelines pooled it, 43 citations in OpenAlex.

  1. Pooled it
  2. Dance movement therapy for dementia.The Cochrane database of systematic reviews · 2023
    Pooled it
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  5. Biases in an artificial intelligence image-generator's depictions of healthy aging and Alzheimer's.Journal of the American Medical Informatics Association : JAMIA · 2026
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  13. Longitudinal Predictors of Informant-Rated Involvement of People with Dementia in Everyday Decision-Making: Findings from the IDEAL Program.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 5 institutions in 1 country.

Lauren Yates *Institute of Mental Health, University of Nottingham, Nottingham, UK.
Emese Csipke *Division of Psychiatry, University College London, London, UK.
Esme Moniz-CookDepartment of Psychological Health and Well-Being, Faculty of Health Sciences, School of Health and Social Work, University of Hull, Hull, UK.
Phuong LeungDivision of Psychiatry, University College London, London, UK.
Holly WaltonDepartment of Applied Health Research, University College London, London, UK.
Georgina CharlesworthDepartment of Clinical, Educational and Health Psychology, University College London, London, UK.
Aimee SpectorDepartment of Clinical, Educational and Health Psychology, University College London, London, UK.
Eef HogervorstNational Centre for Sports and Exercise Medicine, Loughborough University, Loughborough, UK.
Gail MountainCentre for Applied Dementia Studies, University of Bradford, Bradford, UK.
Martin OrrellInstitute of Mental Health, University of Nottingham, Nottingham, UK.
University College London · GBUniversity of Nottingham · GBLoughborough University · GBUniversity of Bradford · GBUniversity of Hull · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveSupport after a diagnosis of dementia may facilitate better adjustment and ongoing management of symptoms. The aim of the Promoting Independence in Dementia (PRIDE) study was to develop a postdiagnostic social intervention to help people live as well and as independently as possible. The intervention facilitates engagement in evidence-based stimulating cognitive, physical and social activities.

methodsTheories to promote adjustment to a dementia diagnosis, including theories of social learning and self-efficacy, were reviewed alongside self-management and the selective optimization model, to form the basis of the intervention. Analyses of two longitudinal databases of older adults, and qualitative analyses of interviews of older people, people with dementia, and their carers about their experiences of dementia, informed the content and focus of the intervention. Consensus expert review involving stakeholders was conducted to synthesize key components. Participants were sourced from the British NHS, voluntary services, and patient and public involvement groups. A tailored manual-based intervention was developed with the aim for this to be delivered by an intervention provider.

resultsEvidence-based stimulating cognitive, physical, and social activities that have been shown to benefit people were key components of the proposed PRIDE intervention. Thirty-two participants including people with dementia (n=4), carers (n=11), dementia advisers (n=14), and older people (n=3) provided feedback on the drafts of the intervention and manual. Seven topics for activities were included (eg, "making decisions" and "getting your message across"). The manual outlines delivery of the intervention over three sessions where personalized profiles and plans for up to three activities are developed, implemented, and reviewed.

conclusionA manualized intervention was constructed based on robust methodology and found to be acceptable to participants. Consultations with stakeholders played a key role in shaping the manualized PRIDE intervention and its delivery. Unlike most social interventions for dementia, the target audience for our intervention is the people with dementia themselves.

Indexed as

Independent LivingSocial SupportAdaptation, PsychologicalAgedAged, 80 and overCaregiversConsensusDementiaEvidence-Based MedicineExerciseFemaleHumansInterviews as TopicMaleMiddle AgedProgram Developmentbehavior changecognitive impairmentmanualpublic patient involvementself-management

Identifiers

PMID31571842
PMCPMC6748161
OpenAlexW2972361722

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.