ArticlePediatric blood & cancer2020
Universal screening for social determinants of health in pediatric sickle cell disease: A quality-improvement initiative.
Article in Pediatric blood & cancer, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers, 5 of them syntheses that pooled it.
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Who cites it
49 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Mental and Emotional Health of Caregivers of Youth with Sickle Cell Disease: A Systematic Review.Journal of health care for the poor and underserved · 2023Pooled it
- Social Needs Resource Connections: A Systematic Review of Barriers, Facilitators, and Evaluation.American journal of preventive medicine · 2022Pooled it
- Social determinants of health and pediatric cancer survival: A systematic review.Pediatric blood & cancer · 2022Pooled it
- Pooled it
- Screening and Referral Care Delivery Services and Unmet Health-Related Social Needs: A Systematic Review.Preventing chronic disease · 2021Pooled it
- Clinical Practice Patterns for Discussing Hydroxyurea Initiation With Families of Children With Sickle Cell Disease.Pediatric blood & cancer · 2026Article
- Social risk factors in pediatric gastroenterology.Journal of pediatric gastroenterology and nutrition · 2026Article
- How High-Performing Community Health Clinics Accomplish Social Risk Screening.Journal of the American Board of Family Medicine : JABFM · 2026Article
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- Article
- Self-Management for Youth Living with Sickle Cell Disease (SMYLS): A study protocol for a multisite randomized controlled trial testing a behavioral, mHealth app.Contemporary clinical trials · 2025Article
- Universal health-related social needs screening in a paediatric rheumatology clinic.Rheumatology advances in practice · 2025Article
- Recommended measurement protocols for sickle cell disease in the PhenX toolkit: psychosocial factors and social determinants of health.Journal of sickle cell disease · 2025Article
- Social determinants of health affect disease severity among preschool children with sickle cell disease.Blood advances · 2024Article
- End-of-life care for people with sickle cell disease: barriers to and facilitators of high-quality care.Hematology. American Society of Hematology. Education Program · 2024Review
- Effects of Air Pollution on Respiratory Events and Pain Crises among Children with Sickle Cell Disease in New York City.Annals of the American Thoracic Society · 2024Article
- Economic burden and quality of life of caregivers of patients with sickle cell disease in the United Kingdom and France: a cross-sectional study.Journal of patient-reported outcomes · 2024Article
- Assessing Patterns of Telehealth Use Among People with Sickle Cell Disease Enrolled in Medicaid During the Start of the COVID-19 Pandemic.Telemedicine journal and e-health : the official journal of the American Telemedicine Association · 2024Article
- Social determinants of health and treatment center affiliation: analysis from the sickle cell disease implementation consortium registry.BMC health services research · 2024Article
- Characteristics of hospital and health system initiatives to address social determinants of health in the United States: a scoping review of the peer-reviewed literature.Frontiers in public health · 2024Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
backgroundSocial determinants of health (SDoH) are socioeconomic factors that influence health outcomes. Guidelines recommend universal screening for SDoH at clinic visits; however, models that do not require additional resources are limited in subspecialty clinics. Individuals with sickle cell disease (SCD) face the burdens of chronic illness and often racial disparities, both of which may increase their vulnerability to adverse SDoH. Hematologists can impact both quality of life and clinical outcomes for their patients by implementing screening and referral programs addressing SDoH.
methodsThrough prospective, quality-improvement methods, we introduced universal screening for SDoH into our pediatric hematology clinic. The intervention was a paper screener followed by a referral to local community organizations for the specific needs endorsed. The aims of this study were to determine the feasibility of universal screening for SDoH in a busy subspeciality clinic using pre-existing resources to identify the needs of our patients and to facilitate referrals between our patients and community organizations via this low touch intervention.
resultsBetween August 2017 and November 2018, 156 screens were completed. Sixty-six percent were positive for at least one unmet social need for which 80% were referred to a relevant community organization. Forty-five percent of patients available via follow-up phone call reached out to the community organization.
conclusionsThere is a high burden of SDoH in families of children with SCD. Universal screening at a pediatric hematology clinic with the subsequent connection of patients with SCD to community resources is feasible using existing clinic resources.
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