ArticleNutrients2019
Measuring Quality of Life in Parents or Caregivers of Children and Adolescents with Celiac Disease: Development and Content Validation of the Questionnaire.
Article in Nutrients, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it, 19 citations in OpenAlex.
- Enhancing life with celiac disease: unveiling effective tools for assessing health-related quality of life.Frontiers in immunology · 2024Pooled it
- Trial
- Measurement Properties of Caregiver Impact Measures in Pediatric Chronic Gastrointestinal Disorders: A Systematic Review.Research square · 2026Article
- Psychosocial Impact of Celiac Disease on Primary Caregivers of Children in Jordan: A Cross-Sectional Study.Children (Basel, Switzerland) · 2026Article
- Development and Validation of a Pediatric Celiac Disease-Specific Quality of Life Measure.The American journal of gastroenterology · 2025Article
- Observational
- Physical and psychological symptoms and survey importance in celiac disease.World journal of gastrointestinal endoscopy · 2024Article
- Study Protocol for a Controlled Trial of Nutrition Education Intervention about Celiac Disease in Primary School: ZELIAKIDE Project.Nutrients · 2024Article
- Experiences and difficulties for primary caretakers of children with celiac disease - A qualitative study.Indian journal of gastroenterology : official journal of the Indian Society of Gastroenterology · 2023Article
- Uncovering the Concerns and Needs of Individuals with Celiac Disease: A Cross-Sectional Study.Nutrients · 2023Article
- Impact of physiotherapy with telerehabilitation on caregivers of patients with neurological disorders: A systematic review protocol.Frontiers in aging neuroscience · 2022Article
- Factors Associated with Maladaptive Eating Behaviors, Social Anxiety, and Quality of Life in Adults with Celiac Disease.Nutrients · 2021Article
- Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature.Health and quality of life outcomes · 2021Review
Corrections and comments
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Authors and funding
7 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Celiac disease (CD) is an autoimmune disorder triggered by the ingestion of gluten and affects approximately 1% of the global population. Currently, the only treatment available is lifelong strict adherence to a gluten-free diet (GFD). Chronic diseases such as CD affect patients and their family members' quality of life (QoL); particularly parents and caregivers who play an essential role in the child's care and treatment. A higher level of psychological distress has been found in the parents of children with chronic ailments due to limited control over the child's daily activities and the child's illness. In this context, the validation of a specific questionnaire of QoL is a valuable tool to evaluate the difficulties faced by parents or caregivers of children with this chronic illness. A specific questionnaire for this population can elucidate the reasons for stress in their daily lives as well as the physical, mental, emotional, and social impact caused by CD. Therefore, this study aimed to develop and validate a specific questionnaire to evaluate the QoL of parents and caregivers of children and adolescents with CD. Overall results showed that a higher family income resulted in a higher score of the worries domain. In addition, having another illness besides CD decreased the QoL (except in the worries domain). The other variables studied did not present a statistically significant impact on the QoL, which was shown to be low in all aspects. Knowledge of the QoL is important to help implement effective strategies to improve celiac patients' quality of life and reduce their physical, emotional, and social burden.
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