ArticlePediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies2020
Parental Conflict, Regret, and Short-term Impact on Quality of Life in Tracheostomy Decision-Making.
Article in Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 3 of them syntheses that pooled it.
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Who cites it
30 citing papers in PubMed, 3 syntheses or guidelines pooled it, 91 citations in OpenAlex.
- Impact of pediatric tracheostomy on family caregivers' burden and quality of life: a systematic review and meta-analysis.Frontiers in public health · 2024Pooled it
- Shared decision-making experiences in child long-term ventilation: a systematic review.European respiratory review : an official journal of the European Respiratory Society · 2023Pooled it
- Initiating technology dependence to sustain a child's life: a systematic review of reasons.Journal of medical ethics · 2022Pooled it
- Associations of Patient and Parent Characteristics With Parental Decision Regret in the PICU: A Secondary Analysis of the 2015-2017 Navigate Randomized Comparative Trial.Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2024Trial
- Using Narratives to Correct Forecasting Errors in Pediatric Tracheostomy Decision Making.Medical decision making : an international journal of the Society for Medical Decision Making · 2021Trial
- Current status and influencing factors of decision conflict among surrogate decision-makers for patients with severe traumatic brain injury in the ICU.Frontiers in medicine · 2026Article
- Phenomenological study on decision fatigue among surrogate decision-makers for ICU patients.Medicine · 2025Article
- Parental Values During Tracheostomy Decision-Making for Their Critically Ill Child: Interviews of Parents Who Just Made the Decision.Children (Basel, Switzerland) · 2025Article
- Feasibility of an Intervention to Support Shared Decision-Making for Critically Ill Infants.The Journal of pediatrics · 2025Article
- Current Status and Influencing Factors of Decisional Conflict in Lung Cancer Patients Receiving Systemic Therapy: A Cross-Sectional Analysis.Thoracic cancer · 2025Article
- Feasibility study protocol: implementing consultation-based high-quality palliative care services in intensive care units.BMJ open · 2025Article
- Time Toxicity: Quantifying Healthcare Utilization Attributable to Pediatric Home Ventilation.Pediatric pulmonology · 2025Article
- Caregiver-informed meta-synthesis of caregivers' experiences with tracheostomy decision-making in pediatrics.Frontiers in pediatrics · 2025Review
- Candidacy Decisions for Long-term Ventilation.Pediatrics · 2024Article
- Article
- Evaluating caregiver-clinician communication for tracheostomy placement in the neonatal intensive care unit: a qualitative inquiry.Journal of perinatology : official journal of the California Perinatal Association · 2024Article
- Parents' experiences of their children's medical journeys with tracheostomies: A Focus Group Study.Paediatrics & child health · 2024Article
- Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation.PEC innovation · 2023Article
- Caring for children with new medical technology at home: parental perspectives.BMJ paediatrics open · 2023Article
- Free Online Decision Tools to Support Parents Making Decisions About Their Children's Chronic Health Condition: An Environmental Scan.Academic pediatrics · 2023Review
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Authors and funding
6 authors at 1 institution in 1 country.
Funding
Abstract
objectivesThe prevalence of tracheostomy-dependence in critically ill children is increasing in the United States. We do not know the impact of this decision on parental outcomes. We aimed to determine the prevalence of decisional conflict and regret and explore the impact on quality of life among parents considering tracheostomy placement for their child. SUBJECTS: Parents facing tracheostomy decision for their child.
designProspective, mixed-methods longitudinal study.
settingPICU, cardiac ICU, and neonatal ICU of a single quaternary medical center.
interventionsNone. MEASUREMENTS AND MAIN
resultsParents completed a decisional conflict survey at the time of tracheostomy decision and decisional regret and quality of life surveys at 2 weeks and 3 months after the decision regarding tracheostomy placement was made. We enrolled 39 parents, of which 25 completed surveys at all three time points. Thirty-five of 39 (89.7%) reported at least some decisional conflict, most commonly from feeling uninformed and pressured to make a decision. At 2 weeks, 13 of 25 parents (52%) reported regret, which increased to 18 of 25 participants (72%) at 3 months. Regret stemmed from feeling uninformed, ill-chosen timing of placement, and perceptions of inadequate medical care. At 2 weeks, the quality of life score was in the mid-range, 78.8 (SD 13.8) and decreased to 75.5 (SD 14.2) at 3 months. Quality of life was impacted by the overwhelming medical care and complexity of caring for a child with a tracheostomy, financial burden, and effect on parent's psychosocial health.
conclusionsThe decision to pursue tracheostomy among parents of critically ill children is fraught with conflict with worsening regret and quality of life over time. Strategies to reduce contributing factors may improve parental outcomes after this life-changing decision.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.