ArticleAdvances in neonatal care : official journal of the National Association of Neonatal Nurses2020
Mothers' Experiences in the NICU Before Family-Centered Care and in NICUs Where It Is the Standard of Care.
Article in Advances in neonatal care : official journal of the National Association of Neonatal Nurses, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed, 37 citations in OpenAlex.
- Article
- Family-Centered care in the NICU: an integrative literature review.Frontiers in pediatrics · 2026Review
- Integration of Early Child Development and Care for Hospitalized Small and Sick Children: A Holistic Approach to Pediatric Health.International journal of preventive medicine · 2026Review
- Factors influencing parental presence in neonatal units: A systematic review.World journal of clinical pediatrics · 2025Article
- Parental perception of pain in premature babies in neonatal intensive care unit: a qualitative study.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- The effect of peer-led education on the quality of life of mothers of premature infants in neonatal intensive care units: a quasi-experimental study.BMC research notes · 2025Article
- Maternal Stress Responses and Coping Following a NICU Experience.Children (Basel, Switzerland) · 2025Article
- Winanga-Li (I Hear You): Privileging Voices and Experiences of Aboriginal Parents' Journey with Their Gaaynggal (Baby) Through a Neonatal Intensive Care Unit.International journal of environmental research and public health · 2025Article
- Infant and Family Outcomes and Experiences Related to Family-Centered Care Interventions in the NICU: A Systematic Review.Children (Basel, Switzerland) · 2025Review
- Optimal presence: enhancing parent integration to maximize neurodevelopmental outcomes in preterm infants.Pediatric research · 2024Review
- The Role of Distance from Home to Hospital on Parental Experience in the NICU: A Qualitative Study.Children (Basel, Switzerland) · 2023Article
- Preparing Parents for Discharge from the Neonatal Unit, the Transition, and Care of Their Preterm Children at Home.Investigacion y educacion en enfermeria · 2023Article
- Living With My Baby With Congenital Anomaly: A Qualitative Case Report.Journal of patient experience · 2022Article
- Parents' pandemic NICU experience in the United States: a qualitative study.BMC pediatrics · 2021Article
- The Association of Social Factors and Time Spent in the NICU for Mothers of Very Preterm Infants.Hospital pediatrics · 2021Observational
- Incorporating parent, former patient and clinician perspectives in the design of a national UK double-cluster, randomised controlled trial addressing uncertainties in preterm nutrition.BMJ paediatrics open · 2021Article
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Authors and funding
6 authors at 1 institution in 1 country.
Funding
Abstract
backgroundFamily-centered care (FCC) in neonatal intensive care units (NICUs) was initiated in 1992 to promote a respectful response to individual family needs and support parental participation in care and decision-making for their infants. Although benefits of FCC have been reported, changes in the maternal experience in the NICU are unknown. PURPOSE: The purpose of this study was to compare mothers' experiences in NICUs where FCC is the standard of care and to compare these with the experiences of mothers 2 decades ago.
methodsIn this qualitative descriptive design, mothers of infants born under 32 weeks postconceptional age were asked to describe their experiences with their infant's birth and hospitalization. Open-ended probing questions clarified maternal responses. Saturation was reached after 14 interviews. Iterative coding and thematic grouping was used for analysis.
resultsCommon themes that emerged were: (1) visiting; (2) general caregiving; (3) holding; (4) feeding; and (5) maternal ideas for improvement. Findings indicated important improvements in privacy, mother-nurse relationship, ease of visiting, and maternal knowledge and participation in infant caregiving. IMPLICATIONS FOR PRACTICE: Mothers suggested improvements such as additional comforts in private rooms, areas in the NICU where they can meet other mothers, and early information on back-transport. Better recognition and response for mothers without adequate social support would provide much needed emotional assistance. IMPLICATIONS FOR RESEARCH: Future research addressing benefits of webcams, wireless monitors, back-transport, maternity leave, and accommodations for extended visiting for siblings would address other needs mentioned by mothers.
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