ArticleHealth expectations : an international journal of public participation in health care and health policy2019
Patient participation in dialysis care-A qualitative study of patients' and health professionals' perspectives.
Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed, 2 syntheses or guidelines pooled it, 38 citations in OpenAlex.
- Diabetic Foot Ulceration in Dialysis-Dependent End-Stage Kidney Disease: A Systematic Review of Epidemiology, Clinical Outcomes and Mortality Risk.Diabetes/metabolism research and reviews · 2026Pooled it
- Patient engagement during the transition from nondialysis-dependent chronic kidney disease to dialysis: A meta-ethnography.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Factors Associated With the Autonomy of Patients Treated by Haemodialysis in Community Centres. A Cross-Sectional Study.Journal of renal care · 2026Article
- Hemodiafiltration beyond the CONVINCE trial.Clinical kidney journal · 2026Review
- Factors influencing home dialysis choice in Scandinavia: a cross-sectional study.BMC nephrology · 2026Article
- Considering Preference-Based Patient Participation-Scientific and Clinical Outcome Measures With the Patient Preferences for Patient Participation Tool.Journal of evaluation in clinical practice · 2026Article
- The Chain of Cannulation: A Qualitative Comparison of the Cannulation Process and European Guidelines.Journal of renal care · 2025Article
- "Teamwork is needed": care management of patients receiving haemodialysis through the eyes of their nurses - a qualitative study.BMC health services research · 2025Article
- Patient participation-18 months of patient and staff perspectives in kidney care: A mixed methods study addressing the effects of facilitating staff person-centredness.Journal of evaluation in clinical practice · 2025Article
- Facilitating person-centered patient participation in kidney care-a process evaluation of a quasi-experimental study incorporating a tool and training of local implementation teams.BMC health services research · 2024Article
- Factors influencing self-care management in adult hemodialysis patients: An integrative review.Qatar medical journal · 2024Article
- The Scale of Perceptions and Self-Participation in Hemodialysis: Development and Psychometric Evaluation.Healthcare (Basel, Switzerland) · 2023Article
- Patient participation in end-stage kidney disease care: variation over time and effects of staff-directed interventions - a quasi-experimental study.BMC nephrology · 2023Article
- Patient preferences and experiences of participation in surgical cancer care.Worldviews on evidence-based nursing · 2022Article
- Self-Participation Experiences among Well-Adapted Hemodialysis Patients.Healthcare (Basel, Switzerland) · 2021Article
- 'It gives you the skills of how you can cope': Exploring the self-reported experience of patients receiving in-centre haemodialysis on participating in chosen art activities.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Preference-based patient participation for most, if not all: A cross-sectional study of patient participation amongst persons with end-stage kidney disease.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Conceptualizing patient participation in psychiatry: A survey describing the voice of patients in outpatient care.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Patient perspectives of target weight management and ultrafiltration in haemodialysis: a multi-center survey.BMC nephrology · 2021Article
- Nephrologists' experiences with patient participation when long-term dialysis is required.BMC nephrology · 2021Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 2 countries.
Funding
Abstract
BACKGROUND AND
objectiveEnd-stage renal disease (ESRD) affects a multitude of aspects in the patient's daily life, often entailing their own involvement in various aspects of the treatment. Although patient participation is a core health-care value, what the concept signifies is not yet fully known. The purpose of this paper is to conceptualize patient participation in dialysis care, depicting patients' and health-care professionals' perspectives.
designThis explorative study employed qualitative interviews and content analysis. SETTING AND
participantsSeven focus group discussions engaging 42 key informants were performed, including patients, staff and managers with experience of dialysis care.
resultsIn dialysis care, patient participation connotes a sharing of information and knowledge, the learning of and planning of care, including partaking in shared decisions with regards to treatment and management, and being involved in the management of one's own health-care treatment and/or self-care activities. Although these attributes were illustrated by all stakeholders, their significance varied: patients suggested that their preferences regarding primary aspects of participation vary, while staff considered patients' performance of dialysis to be the ultimate form of participation. Further, while patients considered multiple ways to execute participation, staff suggested that aspects such as sharing information were a route to, rather than actual, involvement.
conclusionsWithout a common understanding to denote the idea of patient participation, staff and patients are exposed to a potential deficit in terms of facilitating patient participation in everyday encounters of dialysis treatment. Further studies and means to serve a mutual understanding are needed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.