ArticleHealth expectations : an international journal of public participation in health care and health policy2021
'Dignity and respect': An example of service user leadership and co-production in mental health research.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
19 citing papers in PubMed.
- Equitable partnership: patient and public involvement and engagement and community engagement in mental health research in Pakistan.Research involvement and engagement · 2026Article
- Partnering with people with lived experience in eating disorder research: conceptual and practical considerations.Journal of eating disorders · 2026Article
- Scoping Review of Co-Design in Mental Health Research: Essential Elements and Recommendations.OTJR : occupation, participation and health · 2026Article
- Patient- and Public-Led Research - How Is It Defined and Practiced: A Scoping Review.Journal of patient experience · 2026Article
- From theory to practice in training health researchers in patient and public involvement: a scoping review protocol.Systematic reviews · 2025Article
- Towards Coproduction in Mental Health Academia: A Cooperative Inquiry.International journal of mental health nursing · 2025Article
- Difference and subordination - the epistemic struggles of collaborative knowledge production in the field of mental health.Research involvement and engagement · 2025Article
- An in-depth understanding of stakeholders' experiences about their participation in the co-production of 'Maze Out': a serious game for the treatment of eating disorders.Journal of eating disorders · 2024Article
- An auto-ethnographic study of co-produced health research in a patient organisation: unpacking the good, the bad, and the unspoken.Research involvement and engagement · 2024Article
- 'Madness' after the war in Bosnia and Herzegovina - challenging dominant understandings of distress.Health (London, England : 1997) · 2024Article
- Implementing peer support work in mental health care in Germany: The methodological framework of the collaborative, participatory, mixed-methods study (ImpPeer-Psy5).Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Exploring the impact of engagement in mental health and substance use research: A scoping review and thematic analysis.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Roles, outcomes, and enablers within research partnerships: A rapid review of the literature on patient and public involvement and engagement in health research.Research involvement and engagement · 2023Review
- Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review.Research involvement and engagement · 2023Article
- Actualizing community-academic partnerships in research: a case study on rural perinatal peer support.Research involvement and engagement · 2022Article
- "It's a Living Experience": Bereavement by Suicide in Later Life.International journal of environmental research and public health · 2022Article
- Co-production practice and future research priorities in United Kingdom-funded applied health research: a scoping review.Health research policy and systems · 2022Article
- Mitigating unintended consequences of co-design in health care.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- 'Dignity and respect': An example of service user leadership and co-production in mental health research.Health expectations : an international journal of public participation in health care and health policy · 2021Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
This paper explores the methodological aspects of a user-led study investigating mental health service user experiences of targeted violence and abuse (often called 'hate crime'). 'Keeping Control' was a 16-month qualitative study, undertaken in the context of adult safeguarding reforms in England. By collecting data on service user concepts and experiences, the research sought to address a gap in research and practice knowledge relating to targeted violence, abuse and hostility against people with mental health problems. In this paper, we discuss the significance of the design and methodology used for this study, with a particular focus on the interviews with service users. The research was both user-led and carried out in collaboration with practitioners and academics, a form of research co-production. Our aim is to inform researchers, practitioners and policymakers about the value of user leadership in co-productive research with practitioners, particularly for a highly sensitive and potentially distressing topic.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.