ArticleBMJ open2019
Qualitative exploration of emotional and social changes from diagnosis to bereavement for spousal caregivers of persons with dementia.
Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Effectiveness of psychosocial interventions for anticipatory grief in informal caregivers for people living with dementia: a systematic review and meta-analysis.The Gerontologist · 2026Pooled it
- Article
- Meaning making during bereavement as part of caregiver speaks, a narrative photo-elicitation intervention for Caregivers of persons living with dementia.Dementia (London, England) · 2026Article
- Lower income level is associated with less favorable health trajectories in caregivers of people with neurodegenerative disease after caregiving ends.Aging & mental health · 2025Article
- Social Support and Sleep Quality Among Bereaved AD/ADRD Caregivers: A Qualitative Study.Western journal of nursing research · 2025Article
- Article
- Exploring the lived experience of loneliness and social isolation in informal palliative caregivers: A systematic review.Palliative care and social practice · 2025Review
- Comparative Analysis of the Psychosocial Symptoms and Experiences of Bereaved Parents and Parents of Children Who Survived the Sewol Ferry Accident After 5 Years: A Qualitative Interview Study.Journal of Korean medical science · 2022Article
- The Mediational Role of Burden and Perceived Stress in Subjective Memory Complaints in Informal Cancer Caregivers.International journal of environmental research and public health · 2020Article
- "You Don't Feel Alone": Perceptions of the My Tools 4 Care-In Care Web-Based Interactive Toolkit.Global qualitative nursing researchArticle
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo understand how bereaved spousal caregivers of persons with dementia perceive and respond to changes over the course of their spouse's disease, from diagnosis into bereavement.
designQualitative interview study with convenience sampling and thematic analysis approach.
participantsParticipants included eight women and two men (n=10) who had been spousal caregivers for a person with dementia prior to his/her death. Participants were older adults who self-reported good health and were bereaved longer than a year.
settingData collected in a small Canadian prairie city between fall 2014 and winter 2015.
findingsTwo overarching themes were developed as important components of participants' caregiving journey: emotional reactions to change and variation in social connectedness throughout the caregiving and bereavement journey. Four key sub-themes developed through the analysis of emotional reactions to events: memorable grief overshadows persistent grief, a progressive feeling of hopelessness and overwhelmed, relief is common but hidden and gratitude is a milestone in a constructive bereavement. Three key variations of social connectedness throughout the caregiving and bereavement journey were developed: the importance of social inclusion throughout a caregiving and bereavement journey, the repeated loss of companionship and withdrawing from social interactions is contingent on needs.
conclusionsThe findings suggest that emotional changes throughout caregiving and bereavement are not linear. The need for support from family, friends and new social supports is influential in enabling the caregiver to move forward during caregiving and bereavement.
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