ArticleBMJ open2019
Qualitative study exploring patients experiences of being diagnosed and living with primary bone cancer in the UK.
Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it, 37 citations in OpenAlex.
- Psychosocial Impact of Sarcoma: Challenges and Adaptation, a Meta-Synthesis.Psycho-oncology · 2026Pooled it
- Global to local burdens, inequalities, and achievable frontiers of child and adolescent malignant neoplasm of bone and articular cartilage across 953 countries and sublocations, 1980-2040, with deep learning-based forecasts.Journal of orthopaedic translation · 2026Article
- Experiences and Needs of Swiss Cancer Survivors in the Domains of Health-Related Information and the Healthcare System.Cancers · 2024Article
- The Sarcoma Assessment Measure (SAM): Preliminary Psychometric Validation of a Novel Patient-Reported Outcome Measure.Cancers · 2024Article
- Association of Anxiety and Depressive Symptoms with Thyroid Hormone Concentrations in Patients with Primary Bone Tumors.Endocrine, metabolic & immune disorders drug targets · 2024Article
- Rehabilitation Following Above-Knee Amputation in a Pediatric Osteosarcoma Patient: A Case Report.Cureus · 2023Article
- Functional outcomes after reverse shoulder megaprosthesis following resection of malignant bone tumor in the proximal humerus: a systematic review and meta-analysis.JSES international · 2023Review
- Not as simple as "fear of the unknown": A qualitative study exploring anxiety in the radiotherapy department.European journal of cancer care · 2022Article
- "We're on a Merry-Go-Round": Reflections of Patients and Carers after Completing Treatment for Sarcoma.Current oncology (Toronto, Ont.) · 2021Article
- Article
- Development of a patient-reported experience questionnaire for patients with sarcoma: the Sarcoma Assessment Measure (SAM).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
Corrections and comments
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Authors and funding
11 authors at 5 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThe aim of this study is to explore the experiences of patients with primary bone cancer.
designQualitative study design using semistructured interviews and focus groups.
settingHospitals across the UK and recruitment through UK sarcoma charities and support groups.
methodsSemistructured telephone/face-to-face interviews and focus groups with a purposive sample of 26 participants. Data were analysed using Framework Analysis.
participantsPatients (n=26) with primary bone cancer aged 13-77 years. The majority were male (69%), white (85%); diagnosed within 4 years (54%); and had lower limb sarcoma (65%). Ten participants had undergone an upper/lower limb amputation (39%).
resultsThe health-related quality-of-life domains of physical, emotional and social well-being and healthcare professionals' role were the overarching themes of analysis. The physical domain anchored patient experiences. The intensity and length of treatment, the severity of side-effects, the level of disability after surgery and the uncertainty of their prognosis had an impact on patient's self-image, confidence, mood and identity, and caused disruption to various aspects of the patients' social life, including their relationships (emotional and sexual) and participation in work/school and leisure activities. Adaptation was influenced by the way patients dealt with stress and adversity, with some finding a new outlook in life, and others struggling with finding their 'new normal'. Family and friends were the main source of support. Healthcare professional's expertise and support was critical. Rehabilitation services had a considerable role in patient's physical and emotional well-being, but inequitable access to these services was apparent.
conclusionsThis study described the impact of primary bone cancer on patients' well-being and adjustment over time with the identification of influencing factors of better/worse experiences. It showed that impact was felt after end of treatment and affected patients at different life stages. Holistic models of survivorship care are needed.
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