SynthesisQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2020
Outcome measurement instruments for peripheral vascular malformations and an assessment of the measurement properties: a systematic review.
Synthesis in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it, 27 citations in OpenAlex.
- Interventional therapy of extracranial arteriovenous malformations of the head and neck-A systematic review.PloS one · 2022Pooled it
- Clinical differences in sirolimus treatment with low target levels between children and adults with vascular malformations - A nationwide trial.Clinical and translational science · 2023Trial
- Alcohol embolization versus non-invasive treatment for pain relief in peripheral venous malformations: a comparative study.Cardiovascular diagnosis and therapy · 2025Article
- Patient-Reported Outcomes and Psychosocial Impact of Vascular Malformations in Asian Patients.Journal of clinical medicine · 2025Article
- Review
- Shoulder Pain Associated With Multiple Arteriovenous Malformations Successfully Treated With Embolization.Cureus · 2023Article
- Surgical management of auricular arteriovenous malformations: A literature review.Laryngoscope investigative otolaryngology · 2022Review
- Review
- Development of a condition-specific patient-reported outcome measure for measuring symptoms and appearance in vascular malformations: the OVAMA questionnaire.The British journal of dermatology · 2021Article
- A review of mechanisms of disease across PIK3CA-related disorders with vascular manifestations.Orphanet journal of rare diseases · 2021Review
- Responsiveness of quality of life measures in children with peripheral vascular malformations: The OVAMA project.JPRAS open · 2021Article
- Responsiveness of quality-of-life measures in patients with peripheral vascular malformations: the OVAMA project.The British journal of dermatology · 2020Article
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Authors and funding
7 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe Outcome measures for vascular malformation (OVAMA) group reached consensus on the core outcome domains for the core outcome set (COS) for peripheral vascular malformations (venous, lymphatic and arteriovenous malformations). However, it is unclear which instruments should be used to measure these domains. Therefore, our aims were to identify all outcome measurement instruments available for vascular malformations, and to evaluate their measurement properties.
methodsWith the first literature search, we identified outcomes and instruments previously used in prospective studies on vascular malformations. A second search yielded studies on measurement properties of patient- and physician-reported instruments that were either developed for vascular malformations, or used in prospective studies. If the latter instruments were not specifically validated for vascular malformations, we performed a third search for studies on measurement properties in clinically similar diseases (vascular or lymphatic diseases and benign tumors). We assessed the methodological quality of these studies following the Consensus-based Standards for the selection of health Measurement Instruments methodology, and evaluated the quality of the measurement properties.
resultsThe first search yielded 27 studies, none using disease-specific instruments. The second and third search included 22 development and/or validation studies, concerning six instruments. Only the Lymphatic Malformation Function Instrument was developed specifically for vascular malformations. Other instruments were generic QoL instruments developed and/or partly validated for clinically similar diseases.
conclusionsAdditional research on measurement properties is needed to assess which instruments may be included in the COS. This review informs the instrument selection and/or the development of new instruments. SYSTEMATIC REVIEW REGISTRATION: PROSPERO, 42017056242.
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