ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2020
'Diabetes is a gift from god' a qualitative study coping with diabetes distress by Indonesian outpatients.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
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Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it, 46 citations in OpenAlex.
- Understanding Experiences of Diabetes Distress: A Systematic Review and Thematic Synthesis.Journal of diabetes research · 2024Pooled it
- Coping strategies and their relationship with quality of life in older adults with type 2 diabetes: a binary logistic regression analysis.BMC psychology · 2026Article
- The Relationship Between Spiritual Well-Being and Treatment Compliance in Adult Patients with Type 2 Diabetes in Northwestern Türkiye.Journal of religion and health · 2025Article
- Diabetes advocacy in the Asia-Pacific region.Journal of diabetes investigation · 2025Review
- The Lived Experiences of Individuals with Type 2 Diabetes Mellitus with Poor Glycaemic Control in Nigeria: A Qualitative Study.Clinical medicine insights. Endocrinology and diabetes · 2025Article
- Diabetes distress in Veterans with type 2 diabetes mellitus: Qualitative descriptive study.Journal of health psychology · 2024Observational
- Article
- Psychosocial Facilitators and Barriers to Type 2 Diabetes Management in Adults: A Meta-Synthesis.Current diabetes reviews · 2024Review
- Coping strategies for managing diabetes distress in adults with type 1 and type 2 diabetes: a cross-sectional study on use and perceived usefulness.Frontiers in clinical diabetes and healthcare · 2024Article
- Spiritual Well-being, Diabetes Burden, Self-management, and Glycemic Control Among Patients with Type 2 Diabetes in Turkey: A Descriptive and Correlational Study.Journal of religion and health · 2023Article
- The Mediating Role of Acceptance Action and Self-Care in Diabetes Self-Stigma's Impact on Type 2 Diabetes Quality of Life: A Cross-Sectional Study.Behavioral sciences (Basel, Switzerland) · 2023Article
- Feelings, Difficulties and Attitudes in relation to Fasting: A Qualitative Study on Spiritual Coping Among Turkish Patients with Type 2 Diabetes.Journal of religion and health · 2023Article
- Translation and localization the Persian version of diabetes distress scale among type 2 diabetes.Diabetology & metabolic syndrome · 2023Article
- The risk associated with psychiatric disturbances in patients with diabetes in Indonesia (2018): a cross-sectional observational study.Osong public health and research perspectives · 2023Article
- Association between common mental disorder and glycemic control in women with gestational diabetes: A mixed-method study.Indian journal of psychiatry · 2023Article
- Mental health nursing care for people with diabetes mellitus: An integrative review.Revista latino-americana de enfermagem · 2023Review
- What I felt as a diabetes fatigue survivor: a phenomenology study.Journal of diabetes and metabolic disorders · 2022Article
- A qualitative analysis of the perceived socio-cultural contexts and health concerns of sugar-sweetened beverages among adults studying or working at a post-secondary institution in Dharwad, India.BMC public health · 2021Article
- The differences in health-related quality of life between younger and older adults and its associated factors in patients with type 2 diabetes mellitus in Indonesia.Health and quality of life outcomes · 2021Article
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Authors and funding
8 authors at 5 institutions in 2 countries.
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Abstract
backgroundMore than two-thirds of patients diagnosed with type 2 diabetes mellitus (T2DM) in Indonesia encounter medical-related problems connected to routine self-management of medication and the social stigma related to T2DM. The current study aims to explore distress and coping strategies in Indonesian T2DM outpatients in a Primary Healthcare Centre (PHC) in Surabaya, East Java, Indonesia.
methodsWe conducted a qualitative study using two different data collection methods: focus group discussions and in-depth interviews. The guideline of interviews and discussions were developed based on seventeen questions derived from the DDS17 Bahasa Indonesia (a Bahasa Indonesia version of the Diabetes Distress Scale questionnaire), which covered physician distress domain, emotional burden domain, regimen distress domain and interpersonal distress domain.
resultsThe majority of the 43 participants were females and aged 50 or older. Our study discovered two main themes: internal and external diabetes distress and coping strategies. Internal diabetes distress consists of disease burden, fatigue due to T2DM, fatigue not due to T2DM, emotional burden (fear, anxiety, etc.) and lack of knowledge. Internal coping strategies comprised spirituality, positive attitude, acceptance and getting more information about T2DM. External diabetes distress was evoked by distress concerning healthcare services, diet, routine medication, monthly blood sugar checks, interpersonal distress (family) and financial concern. External coping strategies included healthcare support, traditional medicine, vigilance, self-management, social and family support and obtaining information about health insurance.
conclusionOur study shows that for Indonesian T2DM-patients, spirituality and acceptance are the most common coping mechanisms for reducing DD. Furthermore, our study revealed an overall positive attitude towards dealing with T2DM as well as a need for more information about T2DM and potential coping strategies. Finally, an important finding of ours relates to differences in DD between males and females, potential DD associated with health services provision and the specific challenges faced by housewives with T2DM.
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