ArticleThe patient2020
Practical Considerations in Using Online Modified-Delphi Approaches to Engage Patients and Other Stakeholders in Clinical Practice Guideline Development.
Article in The patient, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 63 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
63 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Existing guidance on reporting of consensus methodology: a systematic review to inform ACCORD guideline development.BMJ open · 2022Pooled it
- Guidelines on the diagnosis, clinical assessments, treatment and management for CLN2 disease patients.Orphanet journal of rare diseases · 2021Pooled it
- Methodologies for developing and applying consensus-based recommendations in epilepsy care: A narrative review.Epilepsia · 2026Review
- Integrating real-time polling into modified Delphi methodology: lessons from a consensus study on cardiac implantable electronic device remote monitoring.BMC medical research methodology · 2026Article
- Building consensus and identifying priorities: using a Delphi technique to define core elements and clinical determinates for a nutrition model of care for people with cancer.Journal of cancer survivorship : research and practice · 2026Article
- Article
- Developing a screening-guided volunteer-supported in-home respite services model: a modified online Delphi study.BMC health services research · 2025Article
- Stakeholder input on the CAHPS ambulatory surveys.Journal of patient-reported outcomes · 2025Article
- Article
- Community engagement in health guidelines and other normative products: a methodological review.Bulletin of the World Health Organization · 2025Review
- The Public Health Communication Competency Framework: Results from a multi-method and consensus-building process.Canadian journal of public health = Revue canadienne de sante publique · 2025Article
- Recommended approaches to sharing individual research results in Alzheimer's disease research: A multidisciplinary expert Delphi consensus.Journal of Alzheimer's disease : JAD · 2025Article
- Rights-Based Priorities for Children with SEND in the Post-COVID-19 Era: A Multi-Method, Multi-Phased, Multi-Stakeholder Consensus Approach.Children (Basel, Switzerland) · 2025Article
- Implementation science research priorities for Universal Health Coverage: methodological lessons from the design and implementation of a multicountry modified Delphi study.Health policy and planning · 2025Article
- Removing barriers to management of adults with type 2 diabetes on insulin using continuous glucose monitoring in UK primary care practice: An expert consensus.Diabetic medicine : a journal of the British Diabetic Association · 2025Article
- Developing Core Outcome (Measurement) Sets for Critical Care Research Using the Modified Delphi Method: A Narrative Review.CHEST critical care · 2025Article
- Developing and Tailoring a Person-Centred Pathway for Mental Health Care for People Receiving Dialysis.Nephron · 2025Review
- Delphi study to elicit expert consensus around decision-making in the treatment of Friedreich ataxia.Frontiers in neurology · 2025Article
- Establishing best-practice statements for post-custody community transition: Insights from a modified Delphi study.PloS one · 2025Article
- Guidance for engagement in health guideline development: A scoping review.Campbell systematic reviews · 2024Article
3 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
Patients and caregivers are increasingly recognized as key stakeholders in developing clinical practice guidelines (CPGs). Online engagement approaches offer the promise of a rigorous, scalable, and convenient engagement method. This paper illustrates how an online modified-Delphi approach could be used to engage patients, caregivers, and other stakeholder in CPG development. It provides practical guidance for conducting online modified-Delphi panels that covers (1) joint development of the engagement approach with relevant stakeholders, (2) adaptation of methods used by experts in guideline development, (3) pilot testing, (4) participant recruitment, (5) determining panel size and composition, (6) building participant capacity, (7) facilitation of two-way interaction, (8) continuous engagement and retention of participants, (9) rigorous data analysis, (10) evaluation of engagement activities, and (11) result dissemination. The paper is based on a recently completed study about engaging individuals with Duchenne muscular dystrophy (DMD) and their caregivers in determining the patient-centeredness of DMD care guidelines.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.