Evidence map›Paper›PMID 31539604›Full record

ArticleJournal of pain and symptom management2020

Development and Validation of the Palliative Care Attitudes Scale (PCAS-9): A Measure of Patient Attitudes Toward Palliative Care.

Laura M Perry, Michael Hoerger, Sonia Malhotra, James I Gerhart, Supriya Mohile, Paul R Duberstein

Abstract read
In one paragraph

Article in Journal of pain and symptom management, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed.

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  12. Clinician perspectives on delivering primary and specialty palliative care in community oncology practices.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
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  13. Article
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  16. "It doesn't really apply to what I'm going through": a mixed-methods study of barriers to palliative care among patients with advanced ovarian cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
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  17. Article
  18. Palliative care use and utilization determinants among patients treated for advanced stage lung cancer care in the community and academic medical setting.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Laura M PerryDepartment of Psychology, Tulane University, New Orleans, Louisiana, USA. Electronic address: lperry5@tulane.edu.
Michael HoergerDepartment of Psychology, Tulane University, New Orleans, Louisiana, USA; Department of Medicine, Section of Hematology and Medical Oncology, Tulane University, New Orleans, Louisiana, USA.
Sonia MalhotraDepartment of General Internal Medicine & Geriatrics, Section of Palliative Medicine, Tulane University, New Orleans, Louisiana, USA.
James I GerhartDepartment of Psychology, Central Michigan University, Mount Pleasant, Michigan, USA.
Supriya MohileJames P. Wilmot Cancer Center, University of Rochester School of Medicine and Dentistry, Rochester, New York, USA.
Paul R DubersteinDepartment of Health Behavior, Society and Policy, Rutgers University School of Public Health, Piscataway, New Jersey, USA.

Funding

Tracking & Evaluation CoreU54GM104940 · NIGMS · LSU PENNINGTON BIOMEDICAL RESEARCH CTR · PI Peter Todd Katzmarzyk · 2012 to 2026
$69.1M
URCC NCORP Research BaseUG1CA189961 · NCI · UNIVERSITY OF ROCHESTER · PI Michelle C Janelsins, KAREN M. MUSTIAN · 2014 to 2026
$67.7M
Impact of a Novel Cancer Communication Intervention on Caregiver BereavementR01CA168387 · NCI · UNIVERSITY OF ROCHESTER · PI DUBERSTEIN, PAUL R, PRIGERSON, HOLLY GWEN · 2013 to 2017
$2.6M
NCI NIH HHS R01 CA168387NCI NIH HHS UG1 CA189961NIGMS NIH HHS U54 GM104940
6 · The paper itself

Abstract

contextPalliative Care is underutilized, and research has neglected patient-level factors including attitudes that could contribute to avoidance or acceptance of Palliative Care referrals. This may be due in part to a lack of existing measures for this purpose.

objectivesThe objective of this study was to develop and validate a nine-item scale measuring patient attitudes toward Palliative Care, comprised of three subscales spanning emotional, cognitive, and behavioral factors.

methodsData were collected online in three separate waves, targeting individuals with cancer (Sample 1: N = 633; Sample 2: N = 462) or noncancer serious illnesses (Sample 3: N = 225). Participants were recruited using ResearchMatch.org and postings on the web sites, social media pages, and listservs of international health organizations.

resultsInternal consistency was acceptable for the total scale (α = 0.84) and subscales: emotional (α = 0.84), cognitive (αs = 0.70), and behavioral (α = 0.90). The PCAS-9 was significantly associated with a separate measure of Palliative Care attitudes (ps < 0.001) and a measure of Palliative Care knowledge (ps < 0.004), supporting its construct validity in samples of cancer and noncancer serious illnesses. The scale's psychometric properties, including internal consistency and factor structure, generalized across patient subgroups based on diagnosis, other health characteristics, and demographics.

conclusionFindings support the overall reliability, validity, and generalizability of the PCAS-9 in serious illness samples and have implications for increasing Palliative Care utilization via clinical care and future research efforts.

Indexed as

AttitudePalliative CareHumansPsychometricsReproducibility of ResultsSurveys and Questionnaireshealth knowledge, attitudes, practicePalliative Carepalliative medicinepatient-reported outcome measurespsychometrics

Identifiers

PMID31539604
PMCPMC12449757

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.