ArticleInternational journal of mental health nursing2020
Authentic engagement: A conceptual model for welcoming diverse and challenging consumer and survivor views in mental health research, policy, and practice.
Article in International journal of mental health nursing, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 37 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
37 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- How Do Participatory Citizenship Models Inform Co-production in Health Research? A Systematic Review.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Communication pathways from the emergency department to community mental health services: A systematic review.International journal of mental health nursing · 2022Pooled it
- The CORE study-An adapted mental health experience codesign intervention to improve psychosocial recovery for people with severe mental illness: A stepped wedge cluster randomized-controlled trial.Health expectations : an international journal of public participation in health care and health policy · 2021Trial
- Video-Algorithmic Patient Monitoring in Mental Health Inpatient Settings: Qualitative Study of Patient or Consumer, Clinician, and Vendor Perspectives.JMIR human factors · 2026Article
- Data linkage studies on veteran suicidality: a scoping review of the field, knowledge gaps and evidence appraisal.BMC psychiatry · 2026Article
- Lived Experience Engagement in Service Design and Improvement: Investigating Meaning and Impact.OTJR : occupation, participation and health · 2026Article
- Design Justice in Action: Co-Developing an HIV and Substance Use Linkage Intervention with Young Adults Involved in the Carceral System.Social sciences (Basel, Switzerland) · 2026Article
- Optimism, ambivalence, and opportunities: staff perspectives signaling a critical turn in patient-oriented research in forensic mental health care settings.Frontiers in psychiatry · 2026Article
- Ensuring compulsory treatment is used as a last resort: a narrative review of the knowledge about Community Treatment Orders.Psychiatry, psychology, and law : an interdisciplinary journal of the Australian and New Zealand Association of Psychiatry, Psychology and Law · 2026Article
- To Make Another Goal or to Dream a Different Dream-A Mixed Method Study of Experiences of People Using Mental Health Advance Care Planning.International journal of mental health nursing · 2025Article
- Increasing the Value of Health Intervention Trials: Qualitative Research in the Early Psychosis Intervention Network (EPINET).Community mental health journal · 2025Article
- Towards Coproduction in Mental Health Academia: A Cooperative Inquiry.International journal of mental health nursing · 2025Article
- Using photovoice to define "community" in substance use disorder research engaging service users, providers, and policymakers.SSM. Qualitative research in health · 2025Article
- 'We Are the Cornerstone of This Hospital': First-Hand Accounts of Expert-By-Experience Practices in Forensic Psychiatry in Finland.International journal of mental health nursing · 2025Article
- Reflections From the Wrong Side of the Glass: Lived Experience of Conducting Research in a Mental Health Ward.Journal of psychiatric and mental health nursing · 2025Article
- What are the priorities of consumers and carers regarding measurement for evaluation in mental healthcare? Results from a Q-methodology study.Health research policy and systems · 2024Article
- Engagement of people with lived experience in studies published in high-impact psychiatry journals: meta-research review.Research involvement and engagement · 2024Review
- Two identical twin pairs discordant for longstanding anorexia nervosa and OSFED: lived experience accounts of eating disorder and recovery processes.Journal of eating disorders · 2024Article
- The League: A person-centred approach to the development of social robotics for paediatric anxiety.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Shining a light on the road towards conducting principle-based co-production research in rehabilitation.Frontiers in rehabilitation sciences · 2024Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
As involvement of consumers/survivors in planning, delivery, and evaluation of services has increased, expectations of authentic and effective engagement, versus tokenism, have also risen. Different factors contribute to, or detract from, authentic engagement. Writing from mental health consumer/survivor and nursing positioning, respectively, we aim to redress the common problem of including only a narrow range of views and voices. This paper introduces a conceptual model that supports leaders in research, clinical, service, and policy roles to understand the necessity of engaging with a broader spectrum of consumer/survivor views and voices. The model draws on published consumer/survivor materials, making explicit diverse experiences of treatment and care and identifying the subsequent rich consumer/survivor advocacy agendas. We propose that strong co-production is made possible by recognizing and welcoming consumer/survivor activist, facilitator, transformer, and humanizer contributions. The conceptual model forms the basis for a proposed qualitative validation project.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.