ArticlePloS one2019
"My life after stroke through a camera lens"- A photovoice study on participation in Sweden.
Article in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The Experiences of Social Connection and Isolation in Adults With Acquired Brain Injury: A Qualitative Systematic Review and Metasynthesis.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- 'Some of Them Were Created by People Who Have Never Had a Stroke': Understanding Desired Physical and Occupational Therapy Research Study Features for People With Chronic Stroke.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Factors influencing patients to choose one obesity treatment over another: a qualitative study.International journal of obesity (2005) · 2025Article
- Barriers and Facilitators to Healthy Eating for Shift-Work-Registered Nurses in Hong Kong Public Hospitals: An Exploratory Multi-Method Study.Nutrients · 2025Article
- Article
- What influences patient decisions when selecting an obesity treatment?Obesity pillars · 2024Article
- Experiences of Living With the Nonmotor Symptoms of Parkinson's Disease: A Photovoice Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Stroke and liminality: narratives of reconfiguring identity after stroke and their implications for person-centred stroke care.Frontiers in rehabilitation sciences · 2024Article
- Analysing multimodal data that have been collected using photovoice as a research method.BMJ open · 2023Review
- "Pandemic Fatigue! It's Been Going On since March 2020": A Photovoice Study of the Experiences of BIPOC Older Adults and Frontline Healthcare Workers during the Pandemic.Healthcare (Basel, Switzerland) · 2022Article
- "Back into Life-With a Power Wheelchair": Learning from People with Severe Stroke through a Participatory Photovoice Study in a Metropolitan Area in Germany.International journal of environmental research and public health · 2022Article
- The acceptability of photovoice as a method for incorporating resilience-enhancing factors into pediatric pain research.PloS one · 2022Article
- Co-creating Digital Stories With UK-Based Stroke Survivors With the Aim of Synthesizing Collective Lessons From Individual Experiences of Interacting With Healthcare Professionals.Frontiers in rehabilitation sciences · 2022Article
- Empowering Maasai women behind the camera: Photovoice as a tool for trachoma control.Research involvement and engagement · 2021Article
- Observational
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAn increasing number of people with stroke live in their communities, yet the understanding of how their reintegration into society can best be facilitated is incomplete. If needs are not sufficiently met and difficulties overcome, it may result in limited participation and decreased life satisfaction for this group. We aimed to understand life after stroke through the lens of participants' cameras, and hence their views and experiences guided this study.
methodsBy the means of photovoice, an action research method, this study was conducted in a collaborative format with six women and five men after stroke. Participants photographed in everyday life for up to four weeks and then met to discuss all images in a focus group setting. Subsequently, participants gave feedback on the method and discussed the upcoming photography exhibition. All photos and the three focus group discussions were analyzed using a thematic analysis with an inductive approach.
resultsIn the focus group discussions, life after stroke were conceptualized through five main themes: a driving force to participate in society; managing everyday life through inventiveness and persistent training; insufficient healthcare and rehabilitation in the long-term perspective; finding meaningful relationships and activities in daily life. Participants' voices are made clear through selected photos, which aim to present each theme and make results easier to understand.
conclusionsParticipants found new ways to approach everyday life situations and had thereby regained a sense of control in life. However, it was evident that psychological processes towards adaptation were hindered by depression and that some individuals felt alone in an ongoing struggle. Additionally, available interventions a long time after stroke were not flexible enough to address all participants' needs.
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