ArticleClinical pediatrics2019
Unmet Respite Needs of Children With Medical Technology Dependence.
Article in Clinical pediatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed.
- 'A Moment for Me': The Role of Respite in Sustaining Mental Health Carers.International journal of mental health nursing · 2026Article
- Unseen, Unrelenting, and Uncertain: Caregiver-Identified Targets For Pediatric Palliative Care.Journal of pain and symptom management · 2026Article
- Differences in patient access to and utilization of caregiving services: a scoping review.BMC health services research · 2026Article
- Complex Care Needs of People with Technology Dependence in Disaster Situations: A Scoping Review.Healthcare (Basel, Switzerland) · 2025Review
- Emotional impact, burnout, and isolation among primary family caregivers of children with medical complexity.Families, systems & health : the journal of collaborative family healthcare · 2025Article
- Coping and Meaning-Making Strategies Described by Parents of Children with Medical Complexity.Clinical practice in pediatric psychology · 2025Article
- Effects of Family Caregiver-Nurse Communication on Family Management and Family Caregiver Uncertainty Regarding the Care of Children With Long-Term Ventilator Dependence.Journal of family nursing · 2025Article
- Review
- Magic Mothers: How Parents of Children with Invasive Mechanical Ventilation Can Make Health System Crises Disappear.Journal of developmental and physical disabilities · 2025Article
- Empowering Stoma Care: Enhancing Knowledge, Confidence, and Support Through Collaborative Approaches Between Doctors and Parental Communities for Children with Stomas.Journal of multidisciplinary healthcare · 2025Article
- Mapping health-related quality of life of children and families receiving pediatric invasive home mechanical ventilation: a scoping review protocol.Systematic reviews · 2024Article
- Bridging the gaps in pediatric complex healthcare: the case for home nursing care among children with medical complexity.BMC health services research · 2024Article
- Challenges and recommendations for advancing respite care for families of children and youth with special health care needs: A qualitative exploration.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- The Experience of Parental Caregiving for Children With Medical Complexity.Clinical pediatrics · 2023Article
- Early childhood developmental skills of children with tracheostomies and ventilators recently discharged home.Pediatric pulmonology · 2023Article
- Employing Family Caregivers: An Innovative Health Care Model.Pediatrics · 2022Article
- The Role of Care Coordinators for Children with Respiratory Technologies and Home Nursing.Pediatric allergy, immunology, and pulmonology · 2022Article
- "You Never Exhale Fully Because You're Not Sure What's NEXT": Parents' Experiences of Stress Caring for Children With Chronic Conditions.Frontiers in pediatrics · 2022Article
- Intervention research to improve care and outcomes for children with medical complexity and their families.Current problems in pediatric and adolescent health care · 2021Article
- Social Factors Predictive of Intensive Care Utilization in Technology-Dependent Children, a Retrospective Multicenter Cohort Study.Frontiers in pediatrics · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
Children with medical technology dependency (MTD) require a medical device to compensate for a vital body function and substantial nursing care. As such, they require constant high-level supervision. Respite care provides caregivers with a temporary break, and is associated with reduced stress; however, there are often barriers. The study utilizes mixed methodology with the National Survey of Children with Special Health Care Needs (NS-CSHCN) and semistructured interviews with state-wide care coordinators to understand the gap for respite care services. Fifty-nine percent of parents who needed respite care received none. Parents of older children with MTD were more likely to report respite needs. Care coordinators described that home health shortages created barriers to respite care utilization, and the lack of respite care can lead to hospital readmission. Although respite care is a vital resource to support families of children with MTD, it is infrequently available, which can have severe consequences.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.