ArticleBMJ open2019
Can we normalise developmentally appropriate health care for young people in UK hospital settings? An ethnographic study.
Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Adolescents' and Young Adults' Adherence to Medication During the Transition to Adult Healthcare: A Developmentally Appropriate Framework for Optimising Adherence-Promoting Interventions.Paediatric drugs · 2026Review
- Patient and parent perspectives on an academic rheumatology transition clinic.Health care transitions · 2025Article
- Transition from child to adult health services for young people with cerebral palsy in Ireland; implications from a mixed-methods study.HRB open research · 2024Article
- Stuck in transit: A qualitative study of the transitional care needs of young people with epilepsy and juvenile idiopathic arthritis.Journal of child health care : for professionals working with children in the hospital and community · 2023Article
- Transition to adult services experienced by young people with cerebral palsy: A cross-sectional study.Developmental medicine and child neurology · 2023Article
- 'That's what makes me better': Investigating children and adolescents' experiences of pain communication with healthcare professionals in paediatric rheumatology.European journal of pain (London, England) · 2023Article
- [Children's rights in Austrian hospitals: implementation factors for children's participation].Monatsschrift Kinderheilkunde : Organ der Deutschen Gesellschaft fur Kinderheilkunde · 2022Article
- Developmentally appropriate transitional care during the Covid-19 pandemic for young people with juvenile-onset rheumatic and musculoskeletal diseases: the rationale for a position statement.Pediatric rheumatology online journal · 2021Review
- Palliation, end of life care and ventilation withdrawal in neuromuscular disorders.Chronic respiratory diseaseReview
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Authors and funding
8 authors.
Funding
Abstract
objectiveThe WHO has argued that adolescent-responsive health systems are required. Developmentally appropriate healthcare (DAH) for young people is one approach that could underpin this move. The aim of this study was to explore the potential for DAH to become normalised, to become a routine, taken-for-granted, element of clinical practice.
designQualitative ethnographic study. Analyses were based on procedures from first-generation grounded theory and theoretically informed by normalisation process theory.
settingTwo tertiary and one secondary care hospital in England.
participants192 participants, health professionals (n=121) and managers (n=71) were recruited between June 2013 and January 2015. Approximately 1600 hours of non-participant observations in clinics, wards and meeting rooms were conducted, alongside 65 formal qualitative interviews.
resultsWe observed diverse values and commitments towards the care of young people and provision of DAH, including a distributed network of young person-orientated practitioners. Informal networks of trust existed, where specific people, teams or wards were understood to have the right skill-mix, or mindset, or access to resources, to work effectively with young people. As young people move through an organisation, the preference is to direct them to other young person-orientated practitioners, so inequities in skills and experience can be self-sustaining. At two sites, initiatives around adolescent and young adult training remained mostly within these informal networks of trust. At another, through support by wider management, we observed a programme that sought to make the young people's healthcare visible across the organisation, and to get people to reappraise values and commitment.
conclusionTo move towards normalisation of DAH within an organisation, we cannot solely rely on informal networks and cultures of young person-orientated training, practice and mutual referral and support. Organisation-wide strategies and training are needed, to enable better integration and consistency of health services for all young people.
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