ArticleInternational journal of environmental research and public health2019
Understanding Multilevel Factors Related to Urban Community Trust in Healthcare and Research.
Article in International journal of environmental research and public health, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 45 papers, 2 of them syntheses that pooled it.
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Who cites it
45 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Economic Evaluations of Medication Safety Interventions in Primary and Long-Term Care: A Systematic Review.PharmacoEconomics · 2026Pooled it
- De-implementing low-value care in cancer care delivery: a systematic review.Implementation science : IS · 2022Pooled it
- Examining Trust Among Veterans from Camp Lejeune Exposed to Environmental Toxicants: A Qualitative Study.Journal of general internal medicine · 2026Article
- 'I Took TB Medicine for Six Months Without Having TB': Personal and Institutional Factors Affecting Trust in Healthcare Among African Immigrants in Florida, United States.The International journal of health planning and management · 2026Article
- COVID-19 Vaccine Hesitancy: Trust in Local Clinics Predict Perceptions of Vaccine Safety and Vaccination Status.Community health equity research & policy · 2026Article
- Perspectives of African American couples regarding participation in trials of treatments for obstructive sleep apnea.Journal of the National Medical Association · 2025Article
- Building and sustaining trust across communities: Lessons from a large-scale, community-based cancer needs assessment in New York City.medRxiv : the preprint server for health sciences · 2025Article
- Unequal access in a universal health system: COVID-19 vaccination and health services utilization among international migrants in Brazil.BMC public health · 2025Article
- Labeling in a California Latinx community: public health implications for youth and role in community narratives.BMC public health · 2025Article
- The Role of Boundary Spanning in Building Trust: A Place-Based Study on Engaging Hardly Reached Groups in Community Healthcare Settings.Sociology of health & illness · 2025Article
- Exploring lack of trust and its impact on access and utilization of primary healthcare services among African immigrant women in the United States: a qualitative study of Ethiopian immigrant women.BMC health services research · 2024Article
- Using patient portals for large-scale recruitment of individuals underrepresented in biomedical research: an evaluation of engagement patterns throughout the patient portal recruitment process at a single site within the All of Us Research Program.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Un/met: a mixed-methods study on primary healthcare needs of the poorest population in Khyber Pakhtunkhwa province, Pakistan.International journal for equity in health · 2024Article
- Ethics of research engagement with Deaf people. A qualitative evidence synthesis.Journal of deaf studies and deaf education · 2024Review
- Age, Race, Ethnicity, and Sex of Participants in Clinical Trials Focused on Chronic Pain.The journal of pain · 2024Article
- Vaccine Equity: Lessons Learned Exploring Facilitators and Barriers to COVID-19 Vaccination in Urban Black Communities.Journal of racial and ethnic health disparities · 2024Article
- Factors associated with childhood non-vaccination against COVID-19 in Canada: A national survey analysis.Vaccine: X · 2024Article
- Linking Childhood Cultural Health Capital Factors with Adult Health Literacy.Health literacy research and practice · 2024Article
- Infectious keratitis in Western New York: a 10-year review of patient demographics, clinical management, and treatment failure.Frontiers in ophthalmology · 2024Article
- Community Engagement Alliance (CEAL): A National Institutes of Health Program to Advance Health Equity.American journal of public health · 2024Article
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCommunity and patient engagement in the healthcare system and biomedical research are prerequisites for eliminating health disparities. We conducted a "listening tour" to enhance our understanding of multilevel factors associated with community trust.
methodsUsing community-based participatory research (CBPR) methods, we conducted a phenomenological qualitative study. "Town-hall" style discussions were held at nine sites across an urban, Midwestern city. We recruited adults (N = 130) via community networks, social media, flyers, and word-of-mouth. Demographic assessments were self-administered and listening tour sessions were conducted by trained moderators. Themes were framed within the social ecological model (SEM; intrapersonal, interpersonal, institutional, community, and policy levels).
resultsParticipants were mostly female (68%), African American (80%), had health coverage (97%) and were diagnosed with a chronic health condition (71%). The overarching theme was sociodemographic differences in distrust, such that African Americans and deaf/hearing impaired participants perceived disparities in healthcare, a lower quality of care, and skepticism about biomedical research, relative to Whites.
conclusionsThe depth of distrust for healthcare providers, systems, and researchers in underserved communities remains strong and complex. Findings highlight the need to understand the lived experiences of community members, and how distrust is maintained. Multilevel interventions to increase trust and the accrual of underrepresented populations into clinical trials are needed.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.